Sunday, August 12, 2007

Weekend Update...

TEAM SMYELIN BABES HAS SURPASSED THEIR $10,000.00 GOAL!!!


That's right...thanks to several CHEESE readers, an assortment of friends, and a whole bunch of other donors I don't know, the MS150 Team Saint EB will be pedaling with has reached their fundraising goal. And Saint EB has raised over $1,500.00 of that wad of cash herself...she's the second highest fundraiser on the team so far.


As the weekend draws near for the BIKACIDE, final preparations must be put in motion. I have dubbed Saint EB's final workout music on CD...this is MOST important! LOL Songs such as, "We're Not Gonna Take It" by Twisted Sister and "We Will Rock You" by Queen have been added to the selection. It's vital to have appropriate "theme" music at this stage in the preparations...I can't expect her to ride a bazillion miles on her bike without proper THEME MUSIC, can I?!? Unfortunately, many of these songs are from my...ah..."era" of living and I'm not sure my classical-listening-friend will recognize ANY of the selections. LOL Whatever...


On a more personal note (because this blog IS all about me!), I have decided my recent "leg situation" may possibly be signs of a relapse versus just "overdoing it", as Dr. She Who Will Not Be Named suggested. The numbness in my left upper thigh accompanied by a burning sensation in my lower calf and fiery pins poking me in the sole of my foot when I walk has remained unchanged...except that I am growing *used* to it, unfortunately. It's really hard for me to reply when people ask me if my leg is any better..."No, but I'm growing used to it", IS my typical response. Oddly, I think people mistake that as BETTER...it's not. The physical discomfort remains the same, but my MIND has just accepted this is the way it is...again. And, like most functional human beings, I adapt.


I have spent most of the weekend back on bed rest, watching bad TV and baseball games...only because there is NOTHING else on the BoobTube! I have lost email contact with Dr. SWWNBN, which is probably a good thing. Because we verbally spar repeatedly in email back and forth, the Club Med email system frequently marks my emails as "spam" and blocks them from her inbox...it's just as well. I've got nothing new or improved to report, which might only result in her feeling a need to be "more proactive", AKA, DO SOMETHING, like insist on IV steroids or some other notion we could REALLY fight over!


It bothers me greatly that my "leg situation" is feeling more like a relapse...I've had such a wonderful run on the Novantrone and was beginning to feel invincible again. Isn't it just like MS to knock the wind out of me with a friendly reminder IT/the disease is in charge?!? Hopefully the Novantrone is working to keep whatever is occurring at a lessened affect...that can be a hopeful thing, too. I am chomping at the bit to get back out there and enjoy the remainder of my summer! Thus, the cowering and submission into following the "rest" orders of Dr. SWWNBN...there's a small chance she COULD be right and this, too, shall pass quickly (for once in my life, I really, really want the crazy doc to be right! LOL).


Awright...back to baseball on the Tube. At least the Mariners ARE kicking the Chicago White Sox butts so far in the series. Sorry, Suzy in Chicago ...it's TRUE!!!!

5 comments:

mdmhvonpa said...

It's odd ... I was laying in bed sunday when the alarm went off at 6am. It a radio alarm and the news was just coming on. They had a little thing on MS and a 'cure'. Apparently Johns Hopkins is looking at something called Reversimmune or some other nonsensical thing. What it does is 'reset' the immune system by breaking it down like chemotherapy does. Then you start with a fresh slate. Could not find anything on the web.

BRAINCHEESE said...

MDMHVONPA:

Mkay...the "oddest" part of your comment was not hearing MS news on a Sunday morning. It was YOU laying in bed at 6:00AM AFTER AN ALARM!!!!!! Even God Almighty took Sunday off to rest, brother Mark...

LD

Miss Chris said...

Call me crazy (oh wait...I am crazy) but the last thing I'd ever do would be to break down my immune system intentionally. (see mdmhvonpa's comment).

Sara said...

Congrats on raising all that money - that's fantastical!!

As for breaking down the immune system, I'm going to have to look into that - not heard of that one yet, but then again being in the field doesn't mean I know it all, could be interesting!!

Peej said...

My sister in law (bless her heart) is trying to get me to take her quack... ummm, I mean DOCTOR... seriously when he describes MS as Chronic Revere Polarity disorder.

I admit I just can't which (I'm told) is a sure sign that I have a poor sense of humor and not enough of a wish to get better...

I sure hope this Hopkins thing isn't anything to do with RPD because I'd hate to have to find a recipe for crow!!! LOL!

Hugs!
Peej