Friday, October 31, 2008
Well, what happened was this: Dr. She Who Will Not Be Named sent me the original link to a video that had my BIRTH name in it...and I thought the video was so funny, I resent it to myself with my "Brain Cheese" name embedded (because God forbid, anyone but Baby Jesus and the FBI should know my TRUE identity!). Then I tried to post the video to CHEESE, but it wasn't successful.
SOOOOOOO...the best I can do is post a LINK to the video for you to click to and watch if you so desire: I Always Get Blamed For Everything! Hopefully the LINK won't change the way the video is played like editing the html did!
Awright, Bubbie...click away. LOL
Wednesday, October 29, 2008
Monday, October 27, 2008
Ever now and then, however, one of these image verification thingamajiggies just gets me rolling with hysterical laughter (and *maybe* it's from frontal lobe lesions w/ my MS, too...perhaps).
Like, for instance (and I kid you not), tonight I was over at pUNKrOCKfAIRY's blog (or some spelling like that) reading a very heartfelt post about (what else?) MS and I typed out my comment...I was trying to be "all that" and philosophical with my comment. I was *trying* to be a voice of maturity and wisdom. Until I got to that blogger-image-verification-thingamajiggy and went to type in the letters required to get past the Post Police and LEAVE said comment splattered on her comment wall.
The image verification password I had to type in was P - H - A - A - R - T. phaart. I don't know about YOU, but I'd pronounce that (using the Queen's English) as FART! OMG!!!!
OK, I KNOW there is not a *person* per se who generates these image verification codes, but I really WISH there was because I WANT TO BE THAT GUY/GAL! I've got LOT'S of things I'd like the opportunity to spell out in code (and if you've read much here on CHEESE, you've already noted not only classic spelling ERRORS, but deliberate miss-spelling of words)...Like say *Ubeauch*, or *byteme*, or *effoff*, or *phatcow*, or...my ideas are endless!
Hmmm...you KNOW, if this little psych nurse gig I've got going on ever dries up, I smell a new profession on the horizon!...*gottagogh*, *bbaksoon*...
**(huh, huh...I said fart)**
Saturday, October 25, 2008
OK, Martin (if that really IS your name, which I know it is NOT...Wikipedia told me so, Mr. Ramón Gerardo Antonio Estévez)...when you played the role of the President of the United States on that West Wing Show (which I never watched), I had a tad bit of respect for you (or at least the shows' writers) because your role was that of a president with Multiple Sclerosis. Kudos. But my praise stops with that five-letter word.
Get the hell off my Washington State TV screen with your "ignert" ads concerning Initiative 1000/Washington State Death With Dignity proposition that will be voted on November 4th! You DON'T live here. You seriously DON'T have MS. You can't even VOTE on the initiative because you're not a Washington State resident. So why do you care? Why don't you use that dwindling celebrity status of yours to promote something "good"...like say, MULTIPLE SCLEROSIS AWARENESS?!? Volunteer to do a Greater Washington MS Society ad...for FREE. Otherwise, get the hell off my TV screen about this.
I really can't take much more of this political advertising. No one is telling the TRUTH anyway. But having some aging actor from CALIFORNIA (Malibu to be exact...Wikipedia told me so and we all know Wiki doesn't lie ...wink wink) instill fear and further ignorance about this issue is just maddening!
And while I'm on this rant, let me ALSO say this (because I'm an equal opportunist basher): There is no friggin' DIGNITY in death, so I really wish we could come up with another name for making a moral and competent decision to end one's life when faced with terminal/certain and insufferable pain/death. If anyone believes there is "dignity" in the physiological act of death, try being around a corpse immediately post mortem. Every bodily muscle relaxes, including the bowel and the bladder...death has an "odor". Blood begins to pool and the flesh turns a ghastly and mottled color of crimson and blue/gray. IT'S NOT PRETTY. And it's certainly NOT dignified.
But death IS a fact of life because life IS terminal. Some people would just like to have the CHOICE of opting out of the excruciating part of the pain and suffering that sometimes accompanies dying. Some people would like the CHOICE of bypassing that possibility, in the same way we compassionately put our dogs down at the veterinarian's office (which is an entirely different tangent on this rant).
In Oregon State (where a similar law was passed in 1997), 341 people to date have CHOSEN to enact their right to end their pain/suffering prior to their terminal disease killing them naturally...that's over the past TEN years. And the majority of the folks who seek out the CHOICE via the multitude of forms, exams, mental health evaluations, and certifications they must jump through just to GET legal approval NEVER COMPLETE THE FINAL INGESTION OF THE LETHAL DOSE OF MEDICATIONS. Don't believe me on this one? Google it on the Oregon State DSHS website (and if not, just go Google yourself then!).
So shut up, Ramón Gerardo Antonio Estévez, and stay the heck in California where you belong...where you can die of your OWN natural causes there. Like alcoholism and smog and death by sun stroke....
Friday, October 24, 2008
So WHY am I so focused on shadows today (I KNOW someone must be asking this!)? The answer is both quite simple and highly complex...just what you'd expect from a navel lint gazer, I suppose. LOL
I became aware of a hot, radiating heat that was coming from somewhere outside my bedroom. I could smell popcorn popping, which I KNEW was oddly strange for such an early time of the day. I heard voices outside my door and had the distinct impression my neighbor was popping the corn at barely Dawn's crack, which disturbed me more than annoyed me. Suddenly I put two and two together and realized my neighbor had most likely set the house on fire with a popcorn popper that had overheated!
I dashed out of my front door in complete alarm and panic, frantically searching for the source of the heat, and expecting to find flames dancing around my house. All I found was a stack of smoldering debris, but the heat it produced was quite intense. I sensed at any moment the stack would burst into uncontrollable flames and my house would be consumed.
I yelled at the neighbor to find water...ANY source of H20...and to begin dousing the smoldering debris pile while I called 911. Cell phone in hand, I tried repeatedly to dial those three, simple numbers, but my fingers kept hitting the wrong buttons...which only increased my panic more. When I finally managed to hit all three buttons in sequence, I was connected with the local sheriff's department, who promptly put me on *hold*.
"WTF?!" I screamed into the phone. "My effing house is on fire and I need the fire department here stat, you *$*#(@er's!"
I redialed 911 and got an operator who said, "Just a minute"...I could audibly hear her lay the phone down and walk away. The heat from the debris was becoming intolerable as I watched my neighbor fumble with a small garden hose that only produced a trickle of water, creating more steam than defense.
Then, just as I predicted would happen, a burst of flames shot upward into the sky, and I fell backward from the flash of hot, humid air pressing against my chest. **Fortunately...this is where I awakened from my nightmare.**
It took me several minutes this morning to realize there was no actual *fire* dancing around my hut. I was completely disoriented and drenched in sweat. THIS part of my tale is no dream. I had thoroughly soaked my bed sheets in perspiration and my cheeks (on my face, silly!) felt sunburned...later when looking in the mirror, my face DID appear *burnt* in some strange fashion.
I have spent the day home AGAIN from work, recovering from "something" that took over my body in the night. Dizziness abounds as has weakness and fatigue. I thought I was *over* this...I thought my relapse (if that really IS it's name) had packed it's bags and moved on. I was not prepared for this set back...apprehension and melancholy have plagued my thoughts today...so much so, I have been unable to complete the most simple of tasks. Like remembering to take my daily medications (which has happened twice this week and COULD account for some of my disorientation! DOH!).
I don't know where my day has gone...but I clearly recall how it started. And now, as I prepare to drift off into Slumber Land again, I'm hoping whatever smoldering fire might be lying in wait will decide to burn itself out without disrupting my sleep again. Lest I spontaneously combust...
Wednesday, October 22, 2008
I am surviving post IV Solumedrol withdrawal at the moment. My last dose of a three-series was at 10:00AM on Saturday and I am now (hopefully) on the downward side of the roid wave. Dr. She Who Will Not Be Named no longer does the mean Prednisone taper as it seemed to always cause...well...how shall I say? CRAZINESS. So, I am left to fend for myself with maddened adrenal glands and shocked hormones trying to rebalance an already delicate (and slightly off kilter) biological system.
As always, the steroids provided immediate relief from the horrendous fatigue. Oddly though, I think my system was already running on fumes by the time the IV Soly was introduced as I felt only a mild flight into mania this time around...which is unusual. Generally, I am able to complete a full toothbrush cleaning of my entire baseboards at 4:00AM by day three of the IV's. LOL
The bizarre facial tics and trunk tremors did subside as did the dizziness...until today...sigh. The "tics" and "twitches" have not returned, but the dreaded dizziness has begun to resurface, leaving me feeling once again uncertain of my footing and giving consideration to hurling the 500 pounds of food I have been packing down my gullet while on the steroids.
Steroid withdrawal always leaves me feeling some strange sense of disconnect from my world...as if time is passing by outside my eyes, just not INSIDE my head. Random and tangential thoughts fly by as do completely unrelated bursts of emotion. None of my thoughts seem to come with handles attached...it is quite difficult to hold onto one for more than a momentary touch, until it slips restlessly away from my hands like a slick water balloon. And then, I'm on to the next thing that enters my mind unannounced. I've found that good old fashioned napping is about the best source of comfort while I pass the "crazy" through my system.
Speaking of naps...I woke up this afternoon with the TV chattering at me in the background, only to discover one of my favorite people was featured on one of my not-so-favorite TV shows...Oprah. Dr. Jill Bolte-Taylor (you may remember her from this post) was talking about her book, "My Stroke Of Insight - A Brain Scientist's Personal Journey". If you haven't seen her brief talk linked to the post on CHEESE or read her book, briefly I will say this woman suffered her own stroke, which nearly killed her. She has a fascinating tale and way of telling information about the brain--someone I highly recommend checking out.
Anyway, not to "out tangent" myself here, I *came to* from my nap just as Dr. Bolte-Taylor was discussing with Opie the event that led to her mother's arrival at her ICU bed shortly after her stroke. Dr. Bolte-Taylor had blown out part of her brain and had no word or number recognition abilities...so when everyone was talking about "GiGi" arriving, she had no ability to recall or discern WHO this person was. Turns out, GiGi is/was her mother (who also happened to be in Opie's crowd while her daughter talked today).
I sat on my couch and listened to Dr. Bolte-Taylor talk about how her mother entered her ICU room, nodded at the doctors/nurses, and then without hesitation, walked over to her daughter's bed, pulled back the sheet, and crawled into bed with her. She lay down beside her daughter and simply held her...which was the only thing Dr. Bolte-Taylor COULD feel.
The camera on the TV show cut to "GiGi" and there was this mother of a brain scientist sitting elegantly crying...she wiped her eyes and said, to this day, hearing or talking about this incident remained difficult for her because it brought up so much emotion...not knowing if her adult child was going to live or die...she did the only thing a mother COULD do. She crawled into the bed and held her child.
I know the steroids pulsing out of my body are/were the major catalyst behind the tears that flowed from my eyes as I watched this touching moment on TV...I know the steroids make me crazy-emotional.
But in that moment in time, all I could think was, I hope when/if the day comes that I cannot feel, or hear, or see, or I remain precariously balancing on that mysterious ledge of life, someone...ANYONE...gently pulls back my covers and crawls into my bed. That someone...ANYONE...holds my place for me and finds me wherever I might be amid biological chaos.
And if it is my time to go...someone...ANYONE...gently carries me over the bar back *home*.
Sunday, October 19, 2008
But I've begun to notice a lot of "hits" here on CHEESE of people searching for Tysabri information SPECIFICALLY relating to cost, so I wanted to address HOW to find a TOUCH certified infusion center near you and HOW to go about determining what they are billing/what questions to ask to see if you are eligible for their services at a possibly LOWER distribution fee than where you are getting your TYSABRI infused now (or are considering getting it infused, as the case may be).
http://www.tysabri.com/ is the website to turn to when looking for infusion information. When you first log on to the site, you will get THIS screen:
You have to click the orange button over there for "Multiple Sclerosis Tysabri Patients" to be taken to the next screen, which looks like this:
Now, here is where the Tysabri folks don't necessarily make things easily clear on their website (and I have talked with a representative about this in hopes changes might be made). Off there in the far right hand corner, you may notice a small, red connecting link that tells you to "click here" to find an infusion center near you. It's where the arrow is above.
Click that link, and you are taken to the above page, which will ask you for either your zip code or your state of residence and how far/what radius you are willing to travel to GET your Tysabri. ONLY FILL IN ONE OF THESE LOCATORS...either the zip code or the state...because the site has a tendency to "lock up" if you do both. You can still add your radius location, just not both zip code AND state.
Once you've done the above specifications, the site will soon spit out a list of TOUCH certified infusion centers near you (in whatever mileage radius you requested above). It will give you names of the infusion centers, addresses, phone numbers, how far it is located from your zip code, and whether they are accepting new referrals. I have found the "new referral" issue on the site NOT to be accurate because I've gone ahead and called some that say they AREN'T accepting new patients, and I've been told they ARE. The page will look something like this:
Once you have opted WHICH infusion centers you want to try to connect with, I suggest having a list of the following questions in hand and be prepared to write down their answers for your own notes and reference as well as WHO you spoke to on the phone. If, like me, you call several places, you will find there is a VAST difference in what each of these centers is CHARGING to infuse you! I suggest anyone on Tysabri do their own homework and find a site that BEST meets their personal, travel, and financial needs.
Here are the questions I suggest as a beginning point of reference:
1) Do you accept outside referrals from physicians not affiliated with your program such as ______ neurologist?
2) If yes, are you accepting new referrals?
3) Do you accept _____insurance?
4) If yes, what is the cost billed to ____insurance or paid by ____insurance and does this include the cost of the Tysabri or is the medication provided via an outside specialty pharmacy by my insurance company to you?
A. Or do you have a flat fee billing for every Tysabri patient?
B. Does this cost include necessary laboratory fees?
5) Do you have a "private pay" option?
6) How long have you been TOUCH certified?
7) How many Tysabri patients are you currently infusing?
I'll write more about this later...enough for now, because I'm steroidally challenged and have no more focus here!....
And, you may also note off there to the left side a "Gratitude With Attitude" award I have just received from Lisa over at (one more link here because I just CAN'T seem to link Lisa enough!) Brass & Ivory , which requires me to link up ten MORE of you bloggers out there in the Ethernet World. I have cheated a bit on the rules however (because I've never met a rule I couldn't break), and I have NOT gone back to your blogs and left you a comment letting you know I have linked you to this award. You'll just have to come here to CHEESE and read about yourself...well...YOURSELF! And collect your OWN stinkin' award over there on the side bar.
Because I'm way to bleary-eyed to return to ten more blogs to leave a comment telling you to get your arses over here and pick up your infamous award...
Steroid Mania Out...
Friday, October 17, 2008
I’m usually good with words so I decided to answer your “buck up” question. First off I was wrong about the meaning. I had always thought it meant to toughen up as opposed to cheer up.
I am usually very suspicious of Internet definitions and word origin stories because most of them are bullsh*t. But since I do not own an OED I had no choice. I came across the exact same origin story on dozens of different sites. Which must mean it’s true. Or that ‘cut and paste’ has become the soul of research!
This sounds feasible to me. After the history bit I’ve included several variations that might also apply.
It suggests somebody should cheer up, and not be downhearted or oppressed by circumstances. It is a phrase from nineteenth century Britain, derived from those bucks or dandies who were regarded as the acme of snappy dressing in the Regency period. (In its turn, that word came from buck in the sense of the animal, and had a slightly older meaning still that suggested male gaiety or spirit, with unsubtle suggestions of rutting deer.) In its dandified sense buck up first meant to dress smartly, for a man to get out of those comfortable old clothes and into something drop-dead gorgeous. Since to do so was often a fillip to the spirit, the phrase shifted sometime around the 1880s to its modern meaning.
buck up "cheer up" is from 1844
1. Lye or suds in which cloth is soaked in the operation of bleaching, or in which clothes are washed.
Buck\, v. t. 1. (Mil.) To subject to a mode of punishment which consists in tying the wrists together, passing the arms over the bent knees, and putting a stick across the arms and in the angle formed by the knees.
Buck\ (b[u^]k), v. i. 1. To copulate, as bucks and does.
3. (Mining) To break up or pulverize, as ores.
1. to strive with determination; "John is bucking for a promotion"
2. resist; "buck the trend"
To pass (a task or duty) to another, especially so as to avoid responsibility:
3. an impetuous, dashing, or spirited man or youth.
4. Often Disparaging. a male American Indian or black.
Often disparaging? Often? Meaning there are times when you could refer to an African American male as a buck and it not be taken badly? Maybe I should try that next time someone is talking about Senator Obama. He is certainly dashing and spirited.
I’m glad you are not having a stroke. I like the idea of a betting pool on your longevity – put me down for ten bucks on you living to see 2070. Then you can say – “I lived through the seventies once; I’m not doing it again!” And then you may drift gently into that long goodnight.
Thursday, October 16, 2008
Thought I'd best get this posted ASAP, given the comments received on my previous post (and yes, thank you Anne for spurring me forward). So, after further consultation with Dr. SWWNBN, it has been decided I am having a relapse...quite frankly, THAT thought never crossed my mind, given the *roving and mystery neurological symptoms* I have been experiencing. Oh, and the fact I have been taking Tysabri for over 6 months.
I have yet to read of ANYONE having a relapse while on Tysabri...although, after being hit in the head with a shoe via email from Lisa of Brass & Ivory (and thank YOU, too, Lisa as the voice of reality! LOL), she pointed out that even Biogen Idec doesn't boast 100% relapse-free while on Tysabri in their literature. DOH! *Reality* has never been my forte...sigh.
So, I bucked up (what DOES that mean really and where did the saying "buck up" come from? Lisa? Anyone???) and went in this afternoon for my first dose of three Solumedrol infusions. I suppose IV Soly beats lying around pensively speculating if I'm having a stroke or something worse occurring in my noggin.
And for the record (whoever is keeping one), the REASON I auto-pilot into Strokeland whenever I have such unusual neurological symptoms atypical for MS or my personal history with MS is this: My mother died in my arms from a massive aneurysm. True...an aneurysm is not the same as a *stroke*, but that's sort of splitting hairs when it comes to Post Traumatic Stress Disorder, worry, and sudden brain death! Add on an ounce of nursing knowledge and 22 years in the field, and I can soooooo go there sooooo easily.
I'm seriously hoping the IV Soly changes this dizziness into something more palatable...like maybe GONE? That would be a wonderful outcome. Not to mention, I'm rather looking forward to my piece of the Mania Pie that comes with IV steroids, since I've been so incredibly fatigued/exhausted for the past freakish-almost-week. And these tics and twitches in my face would so totally NOT be missed if they went away...am I asking for too much here?!?
So, thank you again to the many commentors (and also the emailers AND silent readers who I can only ASSUME send well wishes...unless you are only reading CHEESE because you've got bets on my longevity?!?) who slapped me to my senses as well as gently reminded me to take some action. I can't report any change in symptoms (I just had the Soly 4 hours ago...it might seem a bit "odd" if I COULD report changes, doncha think?!) as of yet, but I'm hoping Dr. SWWNBN is correct in her assessment...rather than just trying to shut me the hell up with some steroids and cease the slow release air-balloon-whine I've been squeaking about.
And, as Lisa said privately in email, "at least you've got some groceries"...which is SO funny, yet painfully true to an MSer on steroids about to eat their way through the next three days...sigh...
Day TWO of staying home from work to *rest* while attempting to ward off whatever dark monster is lurking just under my neurological surface. I actually BATHED today...felt it was time since I was beginning to stick to the couch. I DID momentarily feel refreshed and a bit renewed, so of COURSE I thought it wise to try to venture out into the big world and test my land legs again.
No sooner had I arrived at the store to forage for food, I began to feel dizzy again, my vision started to fade in a weird blurry-sort-of-tunnel-type way, I felt immediate exhaustion, and...MY FACE STARTED TO TREMOR. I swear on all that is holy...my face started shaking like an off balance washing machine! Hmmm...new and exciting, you say?
No, not really and the episode passed nearly as quickly as it came on after I sat down in the store to gather my wits about me. I managed to make it home with groceries in tow and just in time to fly down my steps to give offering to the porcelain god with whatever I had just eaten in the past 24 hours...I'm all cleaned out now. Perhaps I should consider signing up for a colonoscopy and take advantage of my situation??!!
I just checked my GoogleReader...61 posts by all y'all out there. They will just have to wait for a time when I can concentrate on your words. For now, I'm going to snake my way into my bed and visualize myself floating down a peaceful river...something without any waves or tremors...
Wednesday, October 15, 2008
Yesterday evening, I returned home from work and was sitting at my computer checking email, etc., when all of a sudden I felt "funny"...not *ha ha* funny, but peculiar funny. My brain felt "sloshy" and I realized I was listing to the left...feeling as if I was leaning in the general direction and having a near vertigo-esque moment. I decided this was most likely due to staring at a computer screen in a darkened room, so I got up to head to my living room and escape the visual screen. This is when I realized I was doing more than just *listing* to the left...I was actually FALLING to my left side.
In what can only be best described as an *alcoholic sway*, I finally made my way to my couch to lie down in hopes of regaining my equilibrium...once supine, life felt balanced again. Of course, I began the mental process of trying to figure out WHAT had gone wrong at the end of a typical day. Perhaps it was something I had eaten? Maybe my insomnia had finally caught up with me? Too much time at the computer? PMLTysabri brain? Could it be another MS exacerbation? Stroke? My mother died from a ruptured aneurysm...these were the thoughts rolling around in my head.
After remaining flat for several minutes and feeling a bit of relief, I decided the *episode* had passed, and I needed a drink of water. I sat up...the world seemed "normal"...stood up, and began to walk across the room to the kitchen, only to find I was once again weaving to my left and clumsily stumbling. WTF?!?
By this time, the weaving was creating a dizzying feeling in my head, which set off a low grade bout of nausea. Nothing else seemed out of kilter...just the dizziness and weaving...something I have not ever experienced before. My rational mind began clicking through the list once again of WHY and WHAT I might be experiencing...nothing *good* was popping into my mind and I felt myself becoming more and more anxious with the dreaded unknown. I got the bright idea to take a warm bath to settle my nerves and contemplate if 911 or a trip to the ER was in my near future...after all...one should never go to an ER wearing the smell of a day on them.
Once in the tub (after weaving my way to the bathroom), my world settled down again...temporarily. Once out of the tub, I promptly fell into my counter top sink, and an internal panic began to set in. WHAT THE HECK WAS WRONG WITH ME? Was this it? Was I finally having that stroke I have all too often joked about? Would I simply fall into a coma only to be found days later due to the stench of rotting flesh in my home? Yes, dear ones...this IS where my mind goes in these moments. LOL
I decided the only thing I COULD do...the BEST response...was to simply take a handful of muscle relaxants and benzos and go to bed. Yup. I didn't call anyone. My rational mind had settled with the notion if I WAS finally having that *joke stroke*, I would hopefully slip quietly away in my sleep.
Obviously I did not die in my sleep nor did I have a stroke (as best as I can tell today). I have no idea WHAT this episode is...I awoke this morning still feeling clumsy and with numbness in my right hand and left side of my face...two symptoms that are NOT new to me...the numbness. I also developed a tight band around my lower torso by morning, which is also not a *new* thing to experience. I emailed Dr. She Who Will Not Be Named my latest "report" and she promptly emailed me back, telling me to "come in and get a MRI and a UA (urinalysis). I emailed her back saying "no".
I have spent the day today home from work and still wondering what in the heck is wrong (or right?!) with me...I seem to be no worse than last night, yet remain pensive as to WHY I am experiencing these symptoms now. I am faithfully complying with monthly Tysabri...I *shouldn't* be experiencing a relapse by statistical data. Yet, I've got no other explanation for feeling this way. I have slept most of the day today and STILL feel crappy. I just don't know what to make of this...
And the truth of the matter is, I think I've lost my will to care for the moment... :-(
Monday, October 13, 2008
Saturday, October 11, 2008
This week or at least the past 5 days has dragged on and felt like 5 months of time passing...and unfortunately, because much of the *content* of my life these past several days involves highly classified and top secret information, I am simply not at liberty to discuss details on this ever-so-public blog...lest I risk being killed. LOL OK, perhaps that IS a bit dramatic...but several *issues* have occurred in my work and personal environment that I AM not ignorant enough to publicly disclose here due to the sensitive nature of the content (because one can never be certain WHO might be voyeuristically peering into the World O' CHEESE and taking notes...*cough, cough...employer, cough, cough*). Suffice it to say, it has been a rather stressful week.
I received a dose of Tysabri last Friday, which started my weekend out with a "bang"...I spent Saturday and Sunday recuperating from the body aching side effects post infusion (which actually weren't as bad as some previous post infusion events this time around). On Monday, *events* at work created a combustible environment and, as they say in the dog training world, "Leave it!"...so, I won't be going into details about THAT issue, but it HAS been keeping me very preoccupied all week.
On Tuesday, I finally got that haircut I have been needing for about a month now...ran errands (as it was my day off this week), did some shopping, fed the neighbor's cats (which I managed to successfully do ALL week without once risking starving them to death!), watched the pitiful presidential debate, then met another friend for dessert late in the evening.
Wednesday began with completing a few more errands, visiting a friend in the hospital (which I also did every day this week, except Tuesday...because I do NOT trust the health care delivery system to keep those that are dear to me ALIVE without constant monitoring. LOL), and returning to work...very *busy* there.
Thursday, I set an alarm so as to get downtown in time to meet a friend and colleague who I met via many State Committee meetings, only to discover I had the DATE wrong for our meeting and we are getting together NEXT Thursday (this is where the Wall DOH! comes in). I wasted no time bee-lining it to Top Pot Doughnuts downtown with the excuse of picking up a treat for my hospitalized friend (but really needing my OWN doughnut fix), flying back home to change clothes for work, stopping by the hospital, then returning to work.
Today, Friday, I retrieved said friend from the bowels of hospital hell, ran by to pick up some grub to eat (since the refrigerators were bare in BOTH our homes), changed clothes again, and returned to work.
I have spent so little time in my own home this week, my cat no longer recognizes me and I fear she has secretly listed my home on eBay while I've been away...with plans to sell to the highest bidder offering a lifetime supply of her favorite cat treats. She's definitely a CHEAP cat, but she's not free...LOL
I am so hoping to get caught up (once again) on my blog roll reading, spend the weekend staring at my walls and drooling, and basically reconstituting what used to be a rational brain...full of MS lesions, yes...but RATIONAL. I'm definitely fatigued and exhausted at this point. I DO hope to get you updated on changes over at AOL Journals, Tysabri pricing issues, more on Disability Employment Month, and an assortment of other topics I am sure you will find titillating (huh, huh, I said tit). But for now, I am needing to return to the Bat Cave and (as my good friend "T" says), "slow my roll".
I'd inquire how YOU are doing, but as you can see, I am utterly self-absorbed and any inquiry would only be an attempt at a false sense of projected concern, which I am certain YOU would see right through...in the World O' CHEESE, the spotlight remains painfully focused on Moi...much like the harsh lighting of an interrogation...sigh...