OK, not THAT kind of relapse in the picture!
Thought I'd best get this posted ASAP, given the comments received on my previous post (and yes, thank you Anne for spurring me forward). So, after further consultation with Dr. SWWNBN, it has been decided I am having a relapse...quite frankly, THAT thought never crossed my mind, given the *roving and mystery neurological symptoms* I have been experiencing. Oh, and the fact I have been taking Tysabri for over 6 months.
I have yet to read of ANYONE having a relapse while on Tysabri...although, after being hit in the head with a shoe via email from Lisa of Brass & Ivory (and thank YOU, too, Lisa as the voice of reality! LOL), she pointed out that even Biogen Idec doesn't boast 100% relapse-free while on Tysabri in their literature. DOH! *Reality* has never been my forte...sigh.
So, I bucked up (what DOES that mean really and where did the saying "buck up" come from? Lisa? Anyone???) and went in this afternoon for my first dose of three Solumedrol infusions. I suppose IV Soly beats lying around pensively speculating if I'm having a stroke or something worse occurring in my noggin.
And for the record (whoever is keeping one), the REASON I auto-pilot into Strokeland whenever I have such unusual neurological symptoms atypical for MS or my personal history with MS is this: My mother died in my arms from a massive aneurysm. True...an aneurysm is not the same as a *stroke*, but that's sort of splitting hairs when it comes to Post Traumatic Stress Disorder, worry, and sudden brain death! Add on an ounce of nursing knowledge and 22 years in the field, and I can soooooo go there sooooo easily.
I'm seriously hoping the IV Soly changes this dizziness into something more palatable...like maybe GONE? That would be a wonderful outcome. Not to mention, I'm rather looking forward to my piece of the Mania Pie that comes with IV steroids, since I've been so incredibly fatigued/exhausted for the past freakish-almost-week. And these tics and twitches in my face would so totally NOT be missed if they went away...am I asking for too much here?!?
So, thank you again to the many commentors (and also the emailers AND silent readers who I can only ASSUME send well wishes...unless you are only reading CHEESE because you've got bets on my longevity?!?) who slapped me to my senses as well as gently reminded me to take some action. I can't report any change in symptoms (I just had the Soly 4 hours ago...it might seem a bit "odd" if I COULD report changes, doncha think?!) as of yet, but I'm hoping Dr. SWWNBN is correct in her assessment...rather than just trying to shut me the hell up with some steroids and cease the slow release air-balloon-whine I've been squeaking about.
And, as Lisa said privately in email, "at least you've got some groceries"...which is SO funny, yet painfully true to an MSer on steroids about to eat their way through the next three days...sigh...