Oddly, I awoke on Friday feeling about the worst I had felt in the past month...my RLS (restless leg syndrome) had kicked up to an all-time new notch with a deep calf pain in my left leg...I also had a worsening return of the vibrating shoulder syndrome as well as severe agitation WITH fatigue. I was beginning to think something was going horribly wrong. So I began emailing Dr. She Who Will Not Be Named for consult, only to discover she has ONCE AGAIN left town for ten days! (Why, God, why does she do this to me when I'm in the throws of relapses? I swear it's a conspiracy.)
But, she has promptly emailed me back from her SIXTH MARATHON race in Chicago this weekend (if I only had HER energy at her age!) and we have settled on maximizing the dose of my latest addition, Mirapex, for the RLS. What is also important to note here (and maybe just a tad bit TMI), I ALSO started a menstrual period yesterday! WOOT?!?! Haven't had one of those since April when Novantrone threw me into premature menopause (a common side effect of the chemo)! So, I imagine the shifting "hairmones" have also been playing a significant role in my recovery or lack there of.
Anyway, Saturday turned out to be a bit better symptom-wise as I am adjusting to the PMS/MS syndrome again...but...I still feel like *effing* crap unfortunately. My grandiose plan to return to work tomorrow was discussed and taken off the table as my cognitive functioning is nil with this severe agitation going on...not to mention, I am STILL having gait difficulties due to the leg issues.
And that, my friends, is the MS report for today. Discouraging on my end of things right now. I have started a new book (when I can sit and concentrate on reading for 15 minutes at a time) called, "Into The Wild"...it's a very short read for my extremely short attention span! I also managed to get my symptoms journal and MedicAlert Key updated today and begin soaking some beans to make my world famous Ham & Bean Soup tomorrow...chopping up little vegetables seems to be something productive and easy for me to focus on right now, so I thought, "Why not cook something?"
I wish I had something more exciting or at the very least interesting to report, but I don't. I'm basically just trying to hold my own right now and not become too discouraged with my slow recovery from this relapse...and...it AIN'T easy! LOL I start the Prednisone taper tomorrow, so I'm hoping for an improvement in my cognitive functioning, but I'm also not holding my breath.
In the meantime, I suggest you peruse some of the great MS Blog reads listed on my left side bar over there...there ARE some folks out there with things far more interesting to say than I right now!...