BRAINCHEESE: Special THANK YOU Post...

Not wanting to be accused of having "bad manners" (as my mother does flip flops in her grave), I'd like to thank ALL of you who supported Saint EB's Bikacide in spirit and in donation. And a special thanks to:

Joan K.
Koko Quincy
Wanda W.
Deborah Faye
Kelsey & Matt Dingman (My fabulous niece -n- nephew!)
"T" (My dawg!)
Sharon Nations
Adina (who donated "anon" to the team)
Carmela Nelson (The One & Only)
Christine Heitz
THE Corrine (is that better?!)
Dianne & Peter Gadzuk
Dr. Rosemary Vienot
Flip O.
Lynne Meredith/Merrynuts
Miles W.
Patti Solinger
"Rojoo", Poet Extraordinaire
Sara Oberdorf
Sharon (Skippy) Lu
Sharon Hendrix
Sinead Lancaster
Steve Zacher
Susan Hand
Virginia Miller, ARNP

I am sure, much to your relief, your "loofly" names will now be immortalized in this post...but...er...removed from the left side bar! Thank you, thank you...

And, by the way, the Smyelin Babes Team earned nearly $25,000 dollars! So one of you MSer's best be hitting the National MS Society up for something...they've got some cash in their pockets again. LOL

MEDICATIONS:

I have taken Copaxone, Avonex, IVIg, Tysabri, and 5 doses of Novantrone in 2007. I also participated in a Rituxan Study in 2005-2006. In the fall of 2007, while still on Novantrone, I began having "break through" symptoms, which became more and more frequent. In March 2008, I had an MRI that showed many enhancing lesions--Novantrone was no longer effective. Tysabri had been discontinued in November 2006, due to a questionable "anaphylactoid reaction". I received my first restart dose of Tysabri on April 8th, 2008, without experiencing ANY allergic response...I completed 9 doses of Tysabri in 2008, but continued to have some relapsing symptoms. I have, since December 2008, stopped all Disease Modifying medications and feel great...but don't tell my neurologist!

6 comments:

Sara said...: yeah, I'm famous - lol; 5:14 AM
BRAINCHEESE said...: SARA:

Infamous is more like it! LMAO BTW, I think you accidentally sent London RAIN here today...

LD; 10:12 PM
Sara said...: oh sorry for that, my mistake, I was trying to send it away from here, guess next time I'll have to be more specific as to where I send it away to - lol; 4:08 AM
BRAINCHEESE said...: SARA:

Well, tis the season for the rains to begin here...right up until JUNE of next year! So, might as well send your weather this way...why ruin some other poor schmuck's fall season?!? We expect it at least...LOL

LD; 11:44 AM
Sara said...: too bad we're expected to expect it as well, London, Portland (where me mum lives), and Seattle all have the same fall/winter/spring weather!; 1:43 PM
BRAINCHEESE said...: SARA:

Can I hear a big "BUMMER" from the peeps? (versus an "Amen"?!?)

LD; 9:55 PM

Sunday, September 16, 2007

Special THANK YOU Post...

6 comments: