Wednesday, July 16, 2008

The Empire Strikes Back!...

Ah, yes...once again I sit with somewhat smug satisfaction, having *won* yet another neurological battle with the "Dark Forces". I am pleased to report I will NOT be dragging myself out on my birthday this month to visit the neurosurgeon! YEAH!!!! That appointment is officially cancelled following this email exchange with Dr. She Who Will Not Be Named:



BrainCheese (Yoda): In spite of myself and my innate skepticism (about Tysabri, etc.), I seem to have turned a wonderful MS corner and I am doing remarkably well. My hands/fingers have returned to a semi-normal state of feeling (but I began losing SKIN off my fingertips two weeks ago like some sort of plague had set in?!? Go figure...) and my neck is at a tolerable level of discomfort at the moment.


Of COURSE this leads me to question the relevance of seeing a neurosurgeon on XX. I have so little to complain about, after all...your thoughts? Do you think this appointment is reeeeeally necessary?



Dr. SWWNBN (Darth Vader): Glad to hear you’re doing better. I guess you can hold off on seeing neurosurgery.





BrainCheese (Yoda): YIPPEE!! I mean...er...OK. Thanks. Besides, I really didn't want to spend my 44th birthday a neurosurgeon's office. Yes, that's right...I am and always WILL be younger than you! (And I really AM doing quite well at the moment)



The truth of the matter is, I really AM doing quite well neurologically these days...and REALLY in spite of myself and my habit of extremely poor self-care. LOL I survived the whirlwind family tour relatively unscathed and feel physically well at the moment. Oh, sure...the *usual*, crappy and lingering MS symptoms remain...those I've grown used to. But there is nothing NEW to report on my MS radar screen, and this feels like REMARKABLE news to me, given my past month of self-imposed intense stress.

Is TYSABRI to blame for my return to wellness? Who knows and frankly, I don't care...but just to appease the MS gods and NOT anger them, I AM going in for my 4th Ty infusion on the 29th. I don't want to test fate at the moment..."something" appears to be working in my favor, so I'm gonna stick with the same game plan for the time being. I'm sure that is, until I get another hair up my hiny to play doctor with myself (Wait! That didn't come out quite right...) and make my own medical changes in my regimen. Hehe...

I am finally catching up on some of my blog reading and have noted several of you NOT doing so well at the moment...I am sorry to read this. I wish we ALL could feel as good as I do for the time being, but such is the nature of this unpredictable disease. Thinking of you all the same...

9 comments:

Shauna said...

Glad to hear that the "force" is with you these days....and thanks for stopping by to catch up the other day...

S.

LISA EMRICH said...

Well you hairy hiny gal. Good to hear the MS gods seem to be appeased for the moment. May they succumb to the summer heat and fall into blissful slumber, and leave the rest of us alone for the time being.

Steve said...

Glad you're doing well and thanks for dropping by the old blogstead.

On another note, with all of the blogs you use, do you have a good RSS reader? If not, you're doing it the very, very hard way. Also, I just learned a neat trick with Google Reader where you can export all of your feeds so that others can "instantly" benefit from your list of Blogs.

Since switching 99% of my blog list to an RSS reader, I am much more on top of keeping up with my favorite people! :D

Denver Refashionista said...

That's great news! I'm feeling better too. I bet you feel better because of all the excercise you did this month but that's just a guess. It really seemsto help when nothing else will.

TEAM H.O.P.E. said...

So so so very glad you are feeling better!

Very glad you enjoyed your niece and nephew!

I was expecting (hoping for) some fun sister stories. I don't have a sister (if I did I would just fight with her because I'm sure my mom would like her better) and I love it when my girlfriends share their sibling stories. Especially after all the buildup with the worms and the ominous music and all.

Sara said...

glad you're feeling better, wish I had more free time at the moment to update my blog, but work is CRAZY busy & my home computer crashed (unrecoverably) so it's going to be awhile till I can get it fixed or replaced . . . UGH!!!!!!!

Miss Chris said...

I am so happy to hear you are feeling well these days!!! Yippee for you!!!

Anonymous said...

Good to know you are feeling better, especially after your latest family marathon. Mt Ranier is absolutely beautiful !!!

Ohiomamma

Bubbie said...

Happy that you are feeling better, especially after your kitchen redo, gardening , work and all the prep that went into your sibling's visit. You wore me out just thinking about it. I've decided that there really is no rhyme or reason to the ups and downs of our symptomology, just enjoy it while the force is with you.