Ah, yes...once again I sit with somewhat smug satisfaction, having *won* yet another neurological battle with the "Dark Forces". I am pleased to report I will NOT be dragging myself out on my birthday this month to visit the neurosurgeon! YEAH!!!! That appointment is officially cancelled following this email exchange with Dr. She Who Will Not Be Named:
BrainCheese (Yoda): In spite of myself and my innate skepticism (about Tysabri, etc.), I seem to have turned a wonderful MS corner and I am doing remarkably well. My hands/fingers have returned to a semi-normal state of feeling (but I began losing SKIN off my fingertips two weeks ago like some sort of plague had set in?!? Go figure...) and my neck is at a tolerable level of discomfort at the moment.
Of COURSE this leads me to question the relevance of seeing a neurosurgeon on XX. I have so little to complain about, after all...your thoughts? Do you think this appointment is reeeeeally necessary?
Dr. SWWNBN (Darth Vader): Glad to hear you’re doing better. I guess you can hold off on seeing neurosurgery.
BrainCheese (Yoda): YIPPEE!! I mean...er...OK. Thanks. Besides, I really didn't want to spend my 44th birthday a neurosurgeon's office. Yes, that's right...I am and always WILL be younger than you! (And I really AM doing quite well at the moment)
The truth of the matter is, I really AM doing quite well neurologically these days...and REALLY in spite of myself and my habit of extremely poor self-care. LOL I survived the whirlwind family tour relatively unscathed and feel physically well at the moment. Oh, sure...the *usual*, crappy and lingering MS symptoms remain...those I've grown used to. But there is nothing NEW to report on my MS radar screen, and this feels like REMARKABLE news to me, given my past month of self-imposed intense stress.
Is TYSABRI to blame for my return to wellness? Who knows and frankly, I don't care...but just to appease the MS gods and NOT anger them, I AM going in for my 4th Ty infusion on the 29th. I don't want to test fate at the moment..."something" appears to be working in my favor, so I'm gonna stick with the same game plan for the time being. I'm sure that is, until I get another hair up my hiny to play doctor with myself (Wait! That didn't come out quite right...) and make my own medical changes in my regimen. Hehe...
I am finally catching up on some of my blog reading and have noted several of you NOT doing so well at the moment...I am sorry to read this. I wish we ALL could feel as good as I do for the time being, but such is the nature of this unpredictable disease. Thinking of you all the same...