Saturday, January 12, 2008

So Busy I Misplaced My Cat...

Can YOU spot the cat in the photo? Yeah, probably you can...it's only ME who has been so busy I almost threw her out with the trash!

I've been running like a hamster on a wheel this past week with a hella hectic schedule...so far, I've managed to WORK 6 days in a row and I have two more to pack in under my belt before I will be able to collapse on a day off. And just to add insult to injury, I am in my every-seven-week-rotation of DAY SHIFTS! Anybody who knows me at ALL, understands how I feel about getting up to greet Dawn's ugly crack and going to work...sigh...


I truly hate it when work interferes with my life. After all, I AM working on my disability, too, and I resent work interfering with that. LOL Fortunately, my "disability" is in check right now for the most part...I am two weeks out from my Novantrone infusion and I am starting to get the "burst" I usually get...something I call my "Flight Into Wellness". I get about 8-10 weeks post Novantrone where I feel what I like to call *normal* again...my pain is lessened, my limbs seem to cooperate with my brain, I have more energy, my muscles in my lower legs seem to let go of their tight grip on my bones, my left side has a sensation of feeling stronger, and I generally have a better outlook on life with MS. The drug appears to be cooperating with me quite well.


I am still committed to my beginning of the year intake plan...I have been limiting my caloric intake as well as trying to exercise for at least 30 minutes a day when I can. Another MAJOR downer of working the dayshift is, I get up when it's dark, I work for 9 1/2 - 10 hours, I sneak in a half hour to an hour of exercise, and I return home to GET READY FOR WORK AGAIN! I really don't know how or why anyone would WANT to work the majority of their hours during the day...but I guess there is that benefit of spending time with your children, having a social life, etc (really NOT worth it to me since I HAVE no children or "social life").


I have been coming home from the county gym after a looooong day exhausted, hungry, dealing with a needy cat, and falling into bed to try to recover...consequently, I have NOT been lending my share of attention to my favorite blogs OR jotting anything down here. I hope y'all can forgive me? I am gritting and grinding my teeth just to get through what I am REQUIRED to do right now, but I have missed my leisurely reading of your blogs.


After Monday, life *should* return to a more copacetic pace and I will get back to the things I enjoy...either that or, I will simply die at my desk and no one at work will notice until I begin to smell. Of course, some of my coworkers ALREADY think I smell, so it might be a very long, long time before I am discovered without a pulse...

Wednesday, January 09, 2008

HIPAA 101 For The Unhip...

Health Insurance Portability and Accountability Act...HIPAA. It's not just a good idea, IT'S THE LAW since April 14, 2003.

Hey, Dr. P.? How 'bout looking into what you can and can't legally say about your alleged "celebrity clients" (who am I kidding? I'm talking about Britney Spears) outside the confines and sanctity of a therapy session (and I use the term "therapy session" not only loosely, but with bile rising in my throat)? No wonder B.S.'s family (yes, I DID use those initials!) is crying foul about you blabbing information to the entire world regarding your "therapeutic" visit to dear Brit's bedside while she awaited a judge to release her from her 5150 hold in California, aka, COMMITMENT, LOCK UP, DETENTION, MENTAL HEALTH HOLD.


Last I was told, not only could I personally be billed a lump sum of 25 grand by the federal government for EACH HIPAA violation I am involved in, but so could the agency for which I am employed. Of course, I don't have my own TV show gifted to me by the all powerful OPRAH, but still. If the Feds are interested in lil' ol' me, surely they have their eye on YOU, too?...


CHA CHING...I hear the sound of lawyers jockeying for position over who will get to handle THIS lawsuit...

Too Bizarre Even For Me...

I've seen a lot and I've heard a lot in my 43 years...I've sat and listened to delusional thoughts, paranoid thoughts, grandiose thoughts, homicidal thoughts, suicidal thoughts, depressed thinking, manic thinking, sociopathic thinking, and occasionally what we deem "normal" thinking in my career in the mental health field. I've witnessed the aftermath of people doing unthinkable things to themselves in bizarre suicide attempts. I've been a witness for the prosecution in a murder case where a man was brutally stabbed to death and died beneath my hands as I attempted to contain his blood loss. I've stopped for car accidents and transitioned more than my share of souls to their heaven or unknown as they have passed in my presence. I've grown accustomed to the "abnormal" of this society...to violence and to death...and, by and large, THIS has become my norm for the world.

But this story coming out of Tyler, Texas, is even too bizarre for me to wrap my head around... http://www.komotv.com/news/national/13489727.html

Sunday, January 06, 2008

Somebody Call The Health Department...

It's official...I think I've finally become a "hoarder" and will require the Health Department to do what's known as a Dig Out! (And no, that picture is NOT of my stuff...LOL...really)

I just finished toting the last of my precious belongings (I say with tongue in cheek) from the rented storage unit into my newly constructed storage addition at my home...an addition I have been patiently waiting almost a year to see completed.


I have been living in my current home for about 2 1/2 years while renting a storage unit at a local business (aka, being charged an arm and a leg to put a roof over CRAP!). When I moved from the previous rental home in 2005, I was overwhelmed with details of buying a home/moving/MS/hot weather, and basically just became tired of the process...this led to throwing "stuff" in boxes rather than SORTING and decided what I should take with me, what should be donated, OR what should be sent to the local landfill. And for 2 1/2 years, I have been storing some "interesting" stuff for no apparent reason...at least that's what I've discovered today.


After many car trips back and forth in rain-mixed-with-snow weather, ALL of my "interesting" stuff is finally under one roof. The only problem is, I'm pretty sure after 2 1/2 years of NEVER opening some of the boxes, there's less in storage that is "interesting" and more out there that could have just been routed to the local landfill! My usual motto is, if I haven't used it in over a year, I'm probably not going to...I'm not sure why THIS stuff has drawn a motto immunity card.


My next dreaded task IS to sort through the "stuff" AND get rid of some or most of it...frankly, it's just taking up too much room and obviously has not been THAT important to me. I did try to glance through some of the boxes/clear containers to get a feel for what might be in them...when I came across the machete, I nearly wet myself. I know WHY I have used this tool in the past, but it is highly doubtful a 43 year old MS fat lady is going to be whacking down brush in the near future! I think this is something I can definitely get rid of now. And the airless Wilson basketball (who's rubber innards are probably degraded by now) can probably go, too...doubtful I'll be playing any "pick up" games with the local neighborhood gang any time in the near future...hehe...


I guess looking on the bright side of things, at least I'm not hoarding CATS...I've been in some little old lady cat hoarder homes and that is enough to keep me down to one feline! And my living quarters ARE relatively a "hoard-free" zone, so this is good.


Say, anybody need a box of plaster casting material for MAKING plaster casts that go around limbs? Ah, DON'T ASK!...

Saturday, January 05, 2008

It Was A Nail Biter...

Seahawks football causes me too much stress...I think next year, I am either going to have to pick a team that is really, really, good or one that sux soooo bad there's just no drama to the exhibition at all!

As promised yesterday, here is the Seahawks post which, by the way, we DID win against the Washington Redskins...but not until late in the fourth quarter. Now it's onward to Greenbay...the originating town/team of the Seahawks coach and quarterback (look out Joyce, the "hawks" could end up playing your "pats" one day!).


So, to get the football portion of this post out of the way, the Seahawks were ahead 13-0 in the first half...then the 3rd quarter came and the "Skins" made a daring comeback. The game became a 14-13 event and it was looking like the "hawks" were going down. In the 4th quarter, the "Skins" choked and the "hawks" pulled ahead, finally winning the match by a 35-14 margin.


There...football out of the way. The best part of the game was being invited to view the event at my friend, Lil' Al's (formerly known as Big Al, but weight loss has caused a change in name). Al has recently acquired a new, high tech, HD LCD TV...a BIG screen. It's not one of those thousands of dollars monstrosities that take up an entire wall of a room, but it is far bigger than anything I've ever watched a game on...I don't even have CABLE, for gawd's sake. LOL


I was amazed by the technology of TIVO and high definition...the picture of these new fangled machines is so crystal clear, I could practically count the nose hairs dangling from Paul Allen's nares (the owner of the Seahawks and previous cohort of Bill Gates). It was as if I was sitting "live" at the game. Well, almost...there were NOT any drunks spilling beer down my back side and the temperature in MY stadium was a snuggly 70 degrees! Oh, and I didn't have to yell at any stoopid fans for standing in my line of sight on the stairs while watching the game. Hmmm...I think it may have been even BETTER than a live game at Qwest Field.


Al and his wife are great fun people...old school...the kind of folks you think about when watching "A Christmas Story". They are always inviting, pleasant, funny, and engaging. We had a game "spread" of enchilada's, refried beans, salad, and drinks...as well as the usual football food of chips/dip/pretzels. It was a most excellent afternoon...the only draw back in the situation is, I missed my afternoon nap(s) and now it is too late in the early evening to even think about stealing a nap OR going to bed early...sigh...


On a slightly different slant to my day, the P.O.D. has bounced back from "whatever" gripped her stomach last night, causing her to spew like Mt. Vesuvius...she has returned to her ever-plotting-world-domination self and is once again sitting at my side by the computer memorizing my passwords. If I ever DO come up missing, check the CAT first! She'll definitely know something...


I was also ever so delighted this morning to discover during my weigh in (which really translates to standing on the scale after I urinate first thing in the morning...TMI?!?) that yet another pound has evaporated from my flesh, bringing me to a total of 8 gone...in 6 days. After the game event today, I most likely shouldn't eat for about a week to make up the difference in calories...and I only have about 8 thousand more to lose to get me back to a reasonable weight! There IS hope on the horizon...of course, I probably lost a pound or so BITING MY NAILS OFF DURING THE GAME, so maybe it will all even out...

Friday, January 04, 2008

Fierce Winds And Furballs...

Yep, another windstorm is blowing through Puget Sound...just in time for the Seahawks first playoff game tomorrow at 1:30PM. I guess we will at least have SOMETHING to blame it on if we lose to the Redskins.

I'm walking around the hut carrying a heavy Mag flashlight...just in case. Nothing worse than being caught in the dark and unable to stumble my way to the cabinet where I usually store the darned thing. I know I'm only tempting the gods by sitting here with my computer blazing into the night...about the time I end this post, I imagine the lights will just go out...before I have time to PUBLISH it to Blogger!


Not much happening in my world today...I continue to recover from my Novantrone infusion one week ago. Mostly recovery at this juncture is really SLEEPING a lot...and for someone who is not accustomed to taking naps, I feel like sleeping is all I am getting done during even the daylight hours. That, and huffing and puffing with the slightest exertion...another short-lived side effect of Novantrone. I have rationalized in my "scientific mind" that this is due to having less blood cells circulating around my body (Novantrone lowers all the blood counts), and therefore, not having enough red blood cells to carry oxygen to my nether regions...either that or, I'm simply fat and old. ;)


The P.O.D. (Princess O' Darkness), aka, my cat, took ill this evening and proceeded to hurl up everything she has ever eaten in her two, short years of life...actually, I think it was just her supper, but it seemed like BUCKETS. She's resting quietly right now on the couch and appears to be returning to her usual varmint self, chasing my feet and attempting to make me tumble. I'll have to monitor her for more signs of illness, but I suspect she just ate too much too fast tonight.


And speaking of eating too much too fast...I'm NOT! My water fast I did on Sunday/Monday jump started me onto a path of "mindful eating". I have been carefully paying attention to my intake and WHAT I am taking in for the past 5 days...and I'm gleeful to report, I have lost 7 pounds. I suppose it helps to be SLEEPING most of a 24 hour period, but I say, "WHATEVER WORKS"! The real test of trial will be when I return to work on Monday...back to a chaotic schedule with no naps...sigh.


I do believe the change in my intake/what I am taking in may also be relieving some of my muscular pain issues as even this has lessened...or literally NO STRESS and SLEEPING a lot has. Hard to tell which is the culprit of relief. I don't really care that much...I'm just glad I am able to lay down without feeling contorted again...or like the band around my torso is going to squeeze my guts out. Not a pleasant feeling to say the least.


If the wind doesn't blow Dorothy's Hut away tonight, I'll be sure and post something tomorrow about the Seahawks game...THAT should be almost as riveting as my cat throwing up...or the New Hampshire primary!...

Thursday, January 03, 2008

Caucus or Caca?...

Call me unpatriotic (gawd knows the NSA probably already has and lists me on their "no fly" records), but is anyone else SICK of hearing about Iowa? I know I am...so all I can say is, "Thank God the Caucus is over!"

I was born in the Midwest and believe me, all of the land in the central U.S. of A. pretty much looks the same...but the people are NOT the same as the rest of us big city dwellers hugging the coast lines of the continental United States. There is very little racial diversity (except in a few crowded cities), little racial/ethnic/sexual preference/religious tolerance and the majority of the populations are "God-fearing" Christians...just ask someone who lives there...ON A FARM...not someone from the inner city of Chicago (which is NOT Iowa, by the way, for anyone confused about my demographic tirade...LOL).


The projected population of Iowa in 2006 was 2,982,085. Caucasians made up about 94% of that population, yet the USA census for that year of minorities living in the USA was over 1 million...it seems folks of color don't "migrate" to Iowa all that often. Of that 2,982,085 projected population of Iowa, roughly 1.7 million live in urban areas while the other 1.2 million live in rural Iowa...in the USA as a whole, about 71% of the population lives in urban areas while only 21% live the rural life. And I doubt very much the prevalence of Multiple Sclerosis is all that high in Iowa either, but I don't have any comparison facts/figures to share...it's just an opinion!


So why do we care what happens in the Iowa Causcuses? You got me on this one...I've been searching and searching all day (in between Novantrone naps) for a reasonable answer to this question. Sure, we could say it's the "kickoff" of the beginning run for the national parties candidate nominations. I'd even go so far as to say it's a "test" site for candidates to practice their presentations. But Iowa? Please...the best thing that's ever come out of this state is BEEF and great chorus lines for the musical, "The Music Man". (Seriously...if you are from Iowa I beg your forgiveness!)


The news said the temperature in Iowa spiked today to 29 degrees...it's colder than a well-digger's arse in Iowa. Farmers are sitting around the local coffee shops with little to do, but stare at the frozen ground and anticipate Spring in Iowa. Everyone is sporting traction tires or chains this time of year in Iowa. High School basketball teams are making their way toward the State championship games in Iowa. Snow is being HAND SHOVELED in Iowa as I type. Tables are being set for "supper" in the evening, not dinner. Folks have just worked 8-10 hours today and are basically thankful to have a job. Fireplaces are burning as a main source of heat tonight in Iowa while kids prepare their homework for another day of class in their rural community school. A love and respect for farm life as well as hope for a better tomorrow is rising in Iowa...


These are the things I would RATHER hear about coming from Iowa today...not the speechs of HuckaRompson or Obaclintwards. They are NOT Iowans (or is it Iowa-ites?), but the candidates DO want their votes. I just wonder if any of these candidates, IF elected to the office of President of the United States, will remember IOWA when the next major drought, tornado, or infestation blows through the state? Probably not...

Wednesday, January 02, 2008

What Does THIS Have To Do With MS?...Nothing...

(Please ignore my dark humor in the picture of a "Cereal Killer" above)

I have been reading a most excellent book entitled, "Gift Of Fear", by Gavin de Becker. It is a book written by a profiler/consultant, who has worked for many government agencies, celebrities, etc., and it tackles the sometimes "poo-poo'd" natural intuition we ALL possess when confronted with violence/danger. If you are "in to" this type of topic, I highly recommend it.


As some of you know from reading past posts, I not only work in the field of psychiatry/law, but I am also a trainer in defensive tactics when confronted with violence. I have attended many seminars and training programs in my 21+ years of working in the psych field and have taught several courses at various agencies I have worked in. I'm a fat, middle-aged, MS-afflicted female at this juncture in my life, but I remain confident if confronted with violence, I will stay safe...maybe a bit "bruised" psychically and perhaps even physically, but I will stay safe. This is because of my years of BEING confronted with potential and actual violence in my work...and, recognizing my gift of intuition...something I also believe we ALL possess.


Over the past month, there have been multiple murders, police shootings, and random killings in my fair city...far more than I think I have ever seen here in a 30 day period. It concerns me deeply that violence has become such a known issue on my local 6 o'clock news. After all, these type of things happen in the "big" cities...not little, calm-and-quiet Seattle.


But Seattle, like any expanding population of people stacked on top of one another, is not immuned to violence. And chances are, we have ALL been affected by violence in some form or another in our lives...either as a first hand witness, knowing a victim, or gawd forbid, knowing a perpetrator and/or being a victim ourselves.


On Christmas Eve, I was riding my usual bus from work to home. The streets were empty of the typical travelers that generally line the bus stops and side walks at 7:00PM. And, as is typical for me, I was standing alone at my bus stop waiting in the cold for a very late bus, when a young male in his early 20's approached me (it is an often talked about theory that those of us who work in the psych field are MAGNETS for the imbalanced!). There was something about his aimless walking and vacant eyes that caused me concern, which I immediately recognized as a typical "disturbed" face...he was either high on something or mentally ill.


He approached me and began talking while eating a piece of pizza. His first line out of his mouth was, "Asians are going to kill all of the white people." He said this with strong conviction, disregarding the fact he, himself, was Caucasian. I relaxed somewhat, recognizing the tell-tale signs of mental illness...after all, I'm trained in this field...and decided my best approach was to simply "uh huh" and "really?" him until my bus arrived.


But as I stood there in the cold with this young man rambling sometimes incoherently, I began to get an uneasy feeling...something I call the "hackles"...that sensation of the hair standing up on the back of the neck in response to something alarming in my environment. THIS was my intuition talking to me...giving me the not so subtle signal of fear.


It wasn't so much the content of the young man's ramblings as it was his intense focus on me. He would not leave and would not stop talking. I realized I was growing more and more uncomfortable with his presence and took a very on guard defensive stance, both mentally and physically. I made sure my cell phone was on and powered up and I positioned my keys between my knuckles in case I might need to use them as a weapon. At one point, he rambled something about needing to "take you into custody" just as my bus pulled up to the stop. I boarded the bus and hoped he was too disorganized to follow.


Unfortunately, right on my heels he followed and sat down beside me...he continued to ramble. I realized he had become fixated on me and the likelihood he "could" just disengage was not strong...his obvious mental illness kept him focused. I continued to have the "hackles" feeling and realized I was going to need to take action to prevent possible violence...my intuition was telling me the situation was not one I could easily shake off or talk my way out of.


At the next major stop (a hospital where my agency has a satellite office and is very well-known to me), I waited until all of the passengers had exited and entered the bus...and, just as the bus driver was readying to close the doors, I jumped up and got off the bus. The young man could not have anticipated my escape and was left peering out at me as the bus pulled away. I did have to wait another 30 minutes for the next connection home, but I didn't mind. "Something" told me to do what I had done and it was for all the right reasons.


I don't actually know if this young man WAS dangerous. He WAS mentally ill, this is certain. And I am not one who is typically fearful of the mentally ill...as I've said repeatedly in other posts, less than 3% of all violent crimes are committed by the M.I. population. Most mentally ill, if reacting with violence, are generally doing so out of their own fear...they are typically more fearful of me than I am of them. Hallucinations or delusions of false reality create fear and, at times, the person reacts to this.


And I can't possibly predict what MIGHT have happened had I stayed on the bus...I know I was concerned about getting off at the near end of the line where I live and possibly having this young man follow me in a residential neighborhood home. But something...my intuition...COMPELLED me to get off the bus when I did, avoiding all possible predictions or outcomes that "could" have occurred.


Did I over react? No. My mind was sending me signals (as were my other senses, too) to ACT...to avoid conflict/violence...and I heeded the warning.


Mr. de Becker talks in his book about intuition ALWAYS being 100% accurate...how we process that intuition or rationalize it may be faulty, causing over reaction, but the intuition itself is pure and serves as a warning signal that should not be overlooked. There IS such a thing as healthy paranoia. LOL


As each of us goes through our day, I encourage everyone to begin to listen to your intuition if you are not doing so already. It may seem trivial or "silly", but it could spare you a world of heartache or even your life. We DO all have our answers inside...sometimes hidden or even buried under years of denial or pain...but our answers are there. All we are being asked to do is listen.


If we become less likely victims and empowered individuals, perhaps perpetrators of violence will have a smaller arena to work within...this is my hope for all of us in 2008...

Tuesday, January 01, 2008

Does This Chair Make My A$$ Look Big?...

OK, that picture is not really one taken of MY ever-expanding back side, but it "could" be...if I continue on the road of inertia and increased calories! As I once told a good friend of mine (a few years after being diagnosed with MS and packing on the steroid pounds), "If I keep this up, you're going to insist I get a motorized wheel chair because I'll be too heavy to push around." She didn't blink nor did she provide me some limited self-esteem by DENYING my statement was true...sigh. Truth only hurts if...well...it's TRUE.

Sadly, after my road to wellness this past summer and being able to increase my exercise while cutting back on my intake (and actually LOSING 15 pounds), I was hit broad side (pun so very much intended) with a relapse that provided me 11 doses of Solumedrol followed by Prednisone 3 times in just over a month. Needless to say, what took me over 3 months to lose (and gain back in strength), was quickly replaced with 15 mysterious pounds recurring in places it hadn't come off of and a substantial decrease in my stamina and strength. Adding on top of that, the holiday season coupled with simply not FEELING well for several weeks, and I have become what feels like an inert bubble of flesh...and I'm not "happy" with this turn of events.


I suppose this is what spurred me onward Sunday to begin a water fast...not the New Year...a generalized discontent with my physical presentation, which I had been feeling for most of the month of December. And, since I am off work this week due to Novantrone last Friday (and already feeling nauseated!), I decided now was as good a time as any to try and disrupt the dysfunctional cycle I have been spiraling around for many weeks.


Food and the ritual of eating is a very insidious "habit" for me...one that I do not always make myself consciously aware of. I have found in the past that the most productive way for me to interrupt this habit is to literally CEASE eating...to become mindful again of the sensation of hunger...and to reset my body's demands. I have to assume a *spiritual* approach to my eating/hunger as a means of becoming aware of the behavior.


From Sunday evening until midnight last night (yes...New Year's Eve...sigh) I consumed only water...large quantities of H20. I allowed my stomach\intestines to rest and empty while attempting to experience the same effect with my mind. Believe me, this process never HAS been an easy one for me and those 24+ hours were no exception. It is much easier to distract myself with food...it somehow feels "safer" to eat. I expend a great deal of mental energy convincing my mind (and body) I am not deprived (depraved maybe, but certainly NOT deprived), that I am in fact "safe", and there is great wisdom to be found in a mind and body that is clear.


I consequently discovered a few new insights...some within myself and some without. One of the most disturbing insights I stumbled upon "without" was just how many FOOD COMMERCIALS are on TV in any given hour! My God...if we Americans are consuming the amount of food shown on television commercials, it is no wonder obesity is one of the leading causes and complications of death in this country. And even commercials that were about DRUGS (and believe me, there are almost as many pharmaceutical commercials on as there are food commercials...but that's an entirely DIFFERENT post) had food in them. Foods that were high in cholesterol, foods low in cholesterol, fast food commercials, grocery store products...the list was ginormous matching only the ginormous a$$e$ of many in America. And I, unfortunately, have fallen into that category.


I have set a goal (not a New Year's Resolution) to return to my summer plan of wellness...after all, it DID work for me. I felt better physically and felt better about myself. Weight is a secondary issue because, even if I weighed 90 pounds, if I didn't feel good physically and mentally about myself, the pounds (or lack of) would mean nothing.


So this is where I am heading into the New Year...to gain some strength back and to feel semi-normal again. I will always have Multiple Sclerosis, but there are many activities I CAN do that are not limited by my MS. And MS certainly does NOT force me to lift a fork full of fries to my mouth whenever I want to feel "full" or "fulfilled".


It's all just food for thought...argh argh...

Monday, December 31, 2007

What's On The Plate for 2008?...

Please forgive the food reference and title of this post...I got a hair up my butt (as my beloved mother used to say...I have NO idea what she really meant by that!) yesterday and decided to begin a fast. I've now been fasting for over 18 hours, so "food for thought" is rattling around in my brain.

I have never been one to participate in New Year's Resolutions...I find the idea to be similar to Confession, which doesn't PREVENT one from future *sins*...it just absolves the past, so to speak. But I do like the idea of shifts in focus. Self-imposed or not. So, my idea of beginning a fast on New Year's Eve is not so much about "resolve" as it is a "shift". And, since I was too ill on Hallows (you remember?...that pagan New Year called Halloween?!?) to participate in my usual fast during that time of year, I decided now was as good a time as any...to SHIFT FOCUS.


As many party-goers (aka, DRUNKS) will be out ringing in the New Year tonight, I will be home contemplating...shifting my focus. Remembering the year(s) past, staying in the "now", and looking toward the light of 2008. 2007 was one of my BETTER years...I think I will be sad to see it go. But, oddly, I am also looking toward the coming year...something I have not often felt over the past 5 years of living with MS.


Some people become very obsessed about the "G" word...goals...this time of year. What's your GOAL for 2008? What do you plan to accomplish in 2008? What do you expect to have happen in 2008? Blahty, blahty, blah. People make resolutions/goals for the New Year, only to find themselves sorely disappointed. I have been guilty of this in my younger years...making outlandish, magical goals without doing the "base" work required to obtain them. As if simply SAYING these goals out loud will somehow change my behaviors that have CAUSED me to need to set a goal in the first place. No introspection has gone into the plan, only the magical plan itself is made.


I have come to recognize "goal" achievement (keeping resolutions...whatever you want to call them) requires "goal" planning. And not some simple resolution I have made up on or around New Year's that might be a "good" idea, but that I lack the substance to achieve. Achieving goals/resolutions is much like building a house. And yes, before any of you creative visualization folks jump down my throat, I WILL say having an idea...a mental picture of what I want...can be an important first step to reaching my goals, too. But sitting and staring (or daydreaming) about the Martha Stewart home in the magazine doesn't magically make the dang thing appear either!


For me, I must first lay out the plan or steps of my goal...the blue print of my theoretical "home" I am about to build. I must carefully think through the design, what tools I will need, what materials will be necessary, and why I really WANT to build my "home" in the first place. And then, I must discuss with myself the idea of consistency and discipline...is my goal something I CAN feasibly do? Will I have the energy to complete the "build"? Can I enlist others to assist me? What if I run out of this material or that amount of energy?...where can I find more? I certainly don't want to clutter up my mental neighborhood with a partially build structure that serves no purpose in the end...and something I've expended a lot of energy on for naught. I find THIS particular stage of my goal-setting to actually be the most important for me...the planning and assessment.


There's a lot that goes into preparing to build a house. Clearing of land and digging for the basement (or taking a good look at dysfunctional behaviors and digging deep into my psyche to discover what is under my foundation), finding the funding (or energy source), gathering supplies (or support systems, friends, sleep...whatever is needed to begin), are just a few things I must think about BEFORE I begin the construction. If I have taken the time to draw up detailed "plans" of my home, the actual BUILDING part is relatively easy...sweat on the brow, but for the most part, simply following the blue print.


In my past, one of the important pieces I lacked in achieving my goals was the MAINTENANCE portion of the goal...yep...hitting a mark is one thing, but staying there is another. Going back to the analogy of the home, it's easy to understand...if I do nothing to maintain my "home", it will quickly fall to shambles from neglect. I must remain ever-vigilant of the "termites" in my mind...those behaviors and ideas that are destructive...in order to keep my home in proper working/living order.


I have, on occasion, had to enlist outside "inspectors" and "exterminators" to help me with the maintenance portion of my goal achievement. Sometimes I NEED to heed the warning of a friend or someone I trust to tell me, from their vantage view point, this behavior or that idea is harmful to my structure or slowly eating away at my "home". I certainly don't like to be TOLD I have developed an infestation, but I am always thankful someone takes the time to do just that...before my goal is completely eroded away.


My hope for you, if you ARE someone who sets goals or New Year's Resolutions, is that you really take the time to PLAN what it is you wish to achieve in 2008....that you give yourself all the advantage you might need to be successful...and that you surround yourself with friends or family who carry hammers, who are there to give you a rest from your project when you need one, and who support you no matter what you are attempting to "build". And with that, you begin to build your dream home...wherever that may be...

Friday, December 28, 2007

Feeling Tired & Blue...


I came to an important conclusion today...I realized I have not been posting here on CHEESE of late because I have simply been too tired to formulate coherent sentences. I believe the holidays, working many hours, the cold and ever-changing Seattle weather, and a "mini-me" relapse condition (You know the kind...not quite big enough to give it the "R" word, but substantial enough to make living with MS a challenge?!?) has zapped me of my super powers...not that I was Wonder Woman to begin with.


I have been struggling with a nagging pain/tightness in my waist and chest, which makes even the most joyful person a bit "crabby". Consequently, my sleep has been disturbed by frequent awakenings as I attempt to turn in positions my tight torso does not want to twist toward...my body prefers to remain stiff as a board and unmoving right now when I sleep, only to awaken with a body bitchiness, as if to say, "Why the heck did you leave me in THAT position all night?!" I just can't seem to please me at this point. LOL


In about 12 hours, I am scheduled to receive my 5th Novantrone infusion. "We" (the neuro and I) decided to go ahead and bump my infusion day up a few weeks because of what has been feeling like a return of annoying MS symptoms..."we" are hoping an early dose of the BLUE DYE will scare away any potential "R-Word" situations that may be brewing about in my brain. It's hard to second guess this disease, but not so hard to recognize a decline in my functioning, which has been occurring over the past 3 weeks. Besides being excited to see the return of my nuclear green urine, I am so hoping THIS dose will finally give me the Smurf-blue whites of my eyes that sometimes accompanies Novantrone...it's the holiday season after all...it would be great to have eyes for 24-48 hours that match the Hanukkah blue lights I have twinkling outside my home!


Perhaps after this dose of chemo, I will find the energy to return to my old habits of near daily drivel here on CHEESE...I know neither YOU nor I can wait! Who knows, I may even return to the proper blog etiquette of REPLYING to comments left here...I'm sure you've all been disappointed by my lack of response. **Trying not to bite my tongue in cheek**


Now, I must go turn on my heating pad and lie down for another fun night of rigor mortis sleep...how I wish I could fall into a "dead sleep"...but, of course, wake up afterward!...

Friday, December 21, 2007

Not EVERYTHING is MS...

How many times have we ALL heard the title of this post? And how many times has this assumption been right or wrong? Probably 50/50 either way, I imagine. Well, here's my latest, "Not everything is MS" story...

As some of you long-standing and not yet completely bored CHEESE readers (or maybe you ARE completely bored and just haven't figured that out yet?!?) know, I have been experiencing difficulty with my vision this past year. No, not optic neuritis difficulty...difficulty READING small print, computer screens, etc. I have delayed seeing my optometrist for several rational reasons (my vision plan wouldn't cover new frames, I wanted to "wait" to see what my vision might do, I couldn't find time in my schedule, etc.) and one completely irrational one...I didn't want to be told the cause of my changing vision was aging!


I finally broke down and made an appointment two weeks ago after losing my glasses TWICE and later locating them on top of my head. I was placing them there whenever needing to read anything up close...for an all-my-life-nearsighted-person, the idea of not being able to read up close was most disturbing. I've ALWAYS been able to see things in front of my face...just not far away. And my right eye is sooooo incredibly near-sighted, I often had to have things smack dab in FRONT of my face to see it, but I still could "see" it with my glasses on. So, my optical appointment went something like this:


EYE DOC: (after twirling, spinning, blowing air in my eyes, and basically blinding me for several minutes) "Well, you are right. Your vision HAS changed substantially since your last exam."


BLIND ONE (me): "I know. I've been putting off coming here for several months. I DID see an opthamologist in April this year because of those headaches (had previously disclosed my "migraine" issues from this spring), but he basically said everything looked fine with my optic nerves. You know, this darned MS can be such a stinker sometimes."


EYE DOC: (looking at me quite puzzled...her face is close enough to mine that I can actually SEE her eyes and quizzical look) "Oh, this isn't MS. This is old age."


BLIND ONE (me): "No, I don't think you heard me correctly. My story is, THIS is MS...and I'm sticking to it!" (me, now looking quite smug)


EYE DOC: (smiling or maybe laughing hysterically...she's moved across the room and I can no longer see her expression) "You can call it what you like, but you need bifocals."


BLIND ONE (me): "That would be MS BIFOCALS, right?" (still with smug look on my face, trying to uphold my inflated attitude)


EYE DOC: "You can call them whatever you like...they're still bifocals."


BLIND ONE (me): (making a leaking air sound as my ego deflates)


So, I now have some very expensive GOGGLES. That's right...these darned "progressive bifocal lenses" feel like I'm wearing goggles. They are great for reading a computer screen, I must admit, but I shan't dare try to WALK more than a step with them on...the FLOOR seems to rise to meet my every step!!! EYE DOC assures me I will eventually "train" my eyes to get used to the new "look"...I hope so. I also hope the dizzy feeling I have gotten during the few hours I have worn them does not trigger my vertigo. If THAT happens, the goggles will be returned to sender and I will be back to my old practice of peering over the top of my mono-lenses or losing them on top of my head.


Man, Multiple Sclerosis can be a beauch sometimes...
and so can getting old, but I'm not admitting that just yet...LOL...


Wednesday, December 19, 2007

Holiday Mental Health Break...


Uncoiling At The Keyboard...

I WISH I was as flexible as that snake...unfortunately, I currently have the appearance of a "L" shape with a bundle of legs drawn up under me. The squeezing in my waist/back/legs has now moved up into my rib cage...a most distressing feeling. The current "plan" is to move up my Novantrone dose a few weeks and see if we can ward off a full-blown relapse (I'm still referring to THIS as a "situation" versus the "R" word!). Baclofen DOES seem to help with the tension, but I'm just not able to take the drug and work coherently...which IS a requirement of my job...coherence.

I'm heading back to bed and still hoping to wake up from a nap and find this "situation" resolved on its own...too much to ask?!?...

Tuesday, December 18, 2007

Makes Me Want To Jump...All OVER Politicians!...

What WILL they think of next? The following article (I forgive any of you for finding it too lengthy or boring to read to its end) was published locally here in Seattle regarding our infamous "suicide bridge". It appears the governor of my fine state is willing to SINK (pun intended) millions of dollars to add a 1/2 mile fencing around and under SUICIDE BRIDGE while cutting MILLIONS OF DOLLARS FROM THE STATE COFFERS TO FUND MENTAL HEALTH TREATMENT!!! No wonder people jump here...there's no money to assist them in ongoing treatment if they don't have really good insurance OR don't qualify for state medicaid, which is also cutting HUNDREDS of people from their rosters because of funding issues.

I guess the politicians better start planning for fences around all the tall buildings in Seattle, around other over passes, making sure no one owns a gun, limiting the number of prescription pills one can obtain in a bottle, decreasing all carbon monoxide fumes known to man, and prohibiting the sale of rope. THAT ought to eliminate suicides in our city...FER SHUR...


Now excuse me while I go answer the phones installed on this bridge to discourage jumpers...I'll have to dust them off first from lack of use...


State budget includes suicide fence on Aurora Bridge

Story Updated: Dec 18, 2007 at 2:40 PM PST
By Associated Press


SEATTLE (AP) - Gov. Chris Gregoire is hoping to take the Aurora Bridge off the list of most popular bridges for committing suicide, by putting $1.4 million in her supplemental budget proposal to begin building an 8-foot suicide-prevention fence on the historic landmark.

More than 40 people are known to have jumped off the bridge in the past decade. Most years, three or four people jump, although nine leapt to their deaths in 2006, tying 1972 as the worst year on record for known suicides from the Aurora Bridge.

The Seattle bridge has the second-highest rate for bridge suicides in the nation, Gregoire said, but doesn't come close to No. 1, San Francisco's Golden Gate Bridge, where about 25 people are known to jump to their deaths each year.

"Installation of an 8-foot suicide-prevention fence with illumination on the Aurora Avenue Bridge will help make the bridge safer and can help prevent suicides," the governor said in budget documents released Tuesday.

She said she plans to put additional dollars in her budget proposal for the 2009-2011 budget period, and estimated the total cost of the project would be $7.5 million.

The half-mile bridge built in 1931 carries State Route 99 over water at its highest point, 155 feet above the channel connecting Lake Union and the Lake Washington Ship Canal north of downtown. But many jumpers fall on solid ground, sometimes onto a parking lot in a former warehouse district that has morphed into a trendy area full of office buildings, shops and restaurants.

The people who work under the bridge or live in the neighborhood should get the credit for the fence money in the governor's supplemental budget, said Stan Suchan, a spokesman for the Washington Department of Transportation.

"That project largely exists because of community involvement. The community is passionate about this," Suchan said. "I do share their concerns and I'm eager for the project to move forward."

The project is complicated by the bridge's status as a national historic landmark, and by the fact that the steel-truss bridge carries 45,000 vehicles a day on one of the main north-south routes through Seattle and requires careful, frequent safety inspections, he said.

A year ago, his department worked with city officials and suicide-prevention experts to install six emergency phones and 18 signs on the bridge, for suicide deterrence. The signs encourage people to seek help instead of jumping.

Measuring the impact of those measures is not possible, said L.J. Eddy, the head of the Seattle Police Department's hostage negotiation team.

"Nobody can say, 'We saw an increase in calls or a decrease in jumpers,"' Eddy said a month after the phones and signs were installed. "And we can't measure the potential suicide person, who sees the signs and turns around."

Suchan said people in his department have already done some research concerning the fence, so the governor would have a good estimate to put in her budget, but the design and planning work will require the dollars she has earmarked.

Government officials had previously ruled out a suicide-prevention fence because it would complicate the inspection process. Because of its height and location between two hills, the bridge is inspected by a special truck that dangles a bucket carrying the inspector over the railing. Building up the height of the railings could hamper those inspections, Seattle transportation officials have said.

Transportation planners will need to find a solution that allows inspections, while still preventing suicides, Suchan said.

"It appears that fencing is the best solution," at least in the Washington Department of Transportation's opinion, he said, adding that the dollars the governor put in her budget match his department's proposal.

The bridge has been altered several times in previous decades - to improve pedestrian safety and to make it more safe in earthquakes.

Sunday, December 16, 2007

What Lies Beneath...

I haven't spoken/typed much lately about my Multiple Sclerosis because...well...I actually haven't posted much about ANYTHING of late. It's not because my MS has vanished. Quite the contrare...it has been lurking just below the surface and, this past week, reminding me of its presence with a gentle "tug". And, as usual, I have been trying to simply keep my head above the water by treading...just like we ALL do, with or without the diagnosis of MS.

What began last weekend as something I chalked up to standing too long in my kitchen stirring snack mix and baking bread has turned into something I can no longer successfully ignore. I've developed a rather annoying and uncomfortable "tightness"/squeezing sensation from my waist down and into both legs. And what is worse, if I stand for more than a few minutes, I have a most unpleasant "pressure" in my bowel, giving me the idea I need to catch up on my reading by sitting on a toilet...I know...TMI...Too Much Information! I decided today, after resting for the ENTIRE weekend, it was time to consult Dr. She Who Will Not Be Named...mostly, because I have never experienced this lower abdominal sensation before.


I will be the first to admit, I really haven't been "myself" lately...WHOEVER that person is! A lack of quality sleep stacked on top of a few stressful weeks at work/holiday rush time/anniversary of my sister's death/and an assortment of "other" unusual circumstances, has left me feeling what can best be described as anxious. And I don't "do" anxiety well. I have pondered the notion I might be experiencing a slight depressed mood, exacerbated by the anxiety...and, I don't DO depressed mood well either. LOL Whatever the case or cause, I have not speculated much about this below-the-waist-phenomenon because I assumed it was just all part of my "mood" and would pass on its own (just like the Cymbalta commericals say, "Depression can hurt"...physically). Unfortunately, today I have had some difficulty walking and the discomfort below my waist has increased to more than a slight distraction...it is interfering with my peace and calm!


There has been a LOT of cold and flu flying around my office and numerous folks have been out sick. When I awoke Thursday morning with my face ACHING (I know, I know...my face must hurt all the time because it's been KILLING you. Old junior high joke...), I assumed the "bug" had finally caught up to me and I was in the beginning throws of a sinus or cold "issue". That pain left me fairly quickly however, and I did not develop further symptoms that would be typical for seasonal illness. I again attempted to just "ignore" my bodily discomfort.


Today, the below-the-waist-phenomenon has kept me pretty much butt-planted on my couch or in bed...minus the making of the previous post's video. Dr. SWWNBN is questioning whether my Novantrone is "holding" me now for the full 3 month dosing sequence...I don't know what to tell her.


What I DO know is, I'd like to hear from any of you that have had a similar symptom...the below the waist squeezing/pressure/discomfort/aching/weakness feeling accompanied with a bowel sensation of needing to "evacuate" (a fancy nursing term for "take a dump")...not bowel urgency...just a feeling like relieving yourself of yesterday's meals would be a "good thing". Anybody? Anything? Ponder this and get back to me, OK? It would be nice to know I'm not just full of sh!+ as the reason for this "pressing" symptom! Or, maybe it WOULD be a relief to know I am just full of it...

Waiting For A Cure...

Saturday, December 15, 2007

Office Parties, Holiday Prep, Anniversaries, Working, and Illness...These Are A Few Of My "Favorite" Things...

Well, like the title of this post says, I've been over-indulging in a few "favorite" (and not so favorite) things this past week and have neglected to troll my FAVORITE blogs OR post anything on this lovely site of breaking news...maybe having a weekend off from work will allow me the necessary time to play catch up. (And BTW, the photo is NOT a pix of any of my coworkers and no animals were harmed in the process of acquiring it!)

So in a brief update, I will provide a tiny tidbit of titillating type and catch all y'all up to speed...because my life is sooooo exciting. Sigh...OK, maybe not "exciting", but it has been busy!


OFFICE PARTIES: After preparing what amounted to enough Grandma Goldie's Holiday Snack Mix to feed a small, third world country, (and baking a bazillion loaves of banana and pumpkin bread) I rented a medium-sized UHaul truck and drove my bounty into work for distribution. As is typical, fighting broke out amongst the clan as snack bags were sized, weighed, and compared to one another for exact "fair" serving amounts. The Washington State National Guard was deployed to *keep the peace* in the cubicular land I call my office.


This week also brought to close one of my supervisor's careers as she waved good-bye into retirement without so much as looking back (good for her, I say!)...and retirement DOES spells "P-A-R-T-Y" in my office. I didn't have to do much for this event as our faithful party planner extraordinaire in the office took care of all the details (including what can only be described as an orgasmic cake eating experience...something we call the "Cora Cake" event) and provided a lovely send off for said "supe" (pronounced "soup" for those of you not familiar with inner office terminology. LOL). It was a nice gathering and I got to spend some time with my previous Big Boss Lady as well as one of my prior supervisors...old home week was a great event as I have had the pleasure of working with some wonderful folks who crawled out from under their OWN rocks of retirement and came in to attend the party.


HOLIDAY PREP: I'd like to say I have finished this yearly ritual of self-defeating purpose, but alas...I have not. For someone who does not even CELEBRATE traditional winter holiday events, I sure seem to be spending a considerable amount of time PREPARING for them! I have finally mailed off packages to my buried-in-snow sister in the Midwest...perhaps by spring, she will be able to make the trek to her mailbox to retrieve my niece and nephew's gifts.


ANNIVERSARIES: Yesterday, December 14th, marked the 20th year anniversary of my eldest sister's death. I suppose that is all that needs to be said here, except I miss her dearly.


WORKING: I actually had the pleasure of going out on some "interesting" cases this week, which required me to use the remaining brain cells I have left to problem solve with patients and their families...I prefer it when my work is "interesting". "Interesting" reinforces why I do the work I do..."interesting" gives me that warm and fuzzy feeling inside, melting some of the icy cynicism that tends to accumulate around my heart after weeks of observation of systems failure in the mental health world.


ILLNESS: All good things come to an end...eventually. My post shingles flight into wellness mode screeched to a halt by Thursday of this week. I awoke with the shared blessing of a sinus headache, most likely passed on to me by one of my ailing coworkers...several peeps have been out sick with some form of cold or flu and I suppose it was only a matter of time before my germ-magnet-immune-system latched onto an infected airborne particle. This sinus pain also came with the onset of nerve pain and aching in my left shoulder and arm...an MS symptom my body often reverts back to whenever it needs to remind me I have holes in my brain. My calves and hips have tightened up once again, giving me the look of the bell ringer at Notre Dame when I first begin to stroll...fortunately, the wonders of pharmacology DO seem to assist with this symptom. I am still over a month away from my next dose of Novantrone, so I am ever-hoping this tiny "flare up" is simply the result of whatever BUG I have been inoculated with. Time always DOES tell...


My cat is now standing on my chest and staring at me, as if to say, "It's the weekend dammit and you are home...pay homage to my presence". I must go serve my humanly duty and become slave to her every desire! If there IS such a thing as reincarnation, I so hope I come back as a cat...sigh...


Tuesday, December 11, 2007

The Secret Recipe(s) Revealed...

I stole the photo off the Internet...it is NOT a photo of my infamous mix. But since I had no photo of the 10 roaster pans I made, I decided to improvise with thievery...I'm good at that.

Grandma Goldie died of ovarian cancer 20 years ago in 1987. I have decided THIS year...the 20th anniversary of her death...is as good a year as any to reveal her secret recipe. Besides, several of you have asked for samples to be sent to your homes and dear Sherry in Colorado already disclosed a "secret" ingredient in her comment...WORCESTERSHIRE SAUCE! It seems she may have grown up in the same "white trash" era I did. LOL


So, since I can't (and won't) mail each of you who inquired a sample, I'll just give you the recipe for you to make some yourselves...Moohahaha. And without further ado, here is my dear Gran's recipe:


4 cups Chex cereal, Cheerios, Kix, Cheese Balls, Pretzels, and Nuts

3/4 cup Salad Oil

2 TBLS Worcestershire Sauce

1 TBLS Garlic Powder

1 TBLS Paprika


Mix/Blend Oil and Worcestershire Sauce and pour over dry ingredients. Sprinkle Garlic Powder and Paprika over on mix, while stirring to evenly distribute. Bake for 2 hours at 225 degrees, stirring every 20 minutes in oven.


**Tips: I tend to buy corn/wheat/rice chex cereal and add all three. One box of regular sized cereal has about 8-10 cups in it...you CAN make a lot! Planter's no longer makes their cheese balls (believe me, when they stopped making them, I called the company!). Utz does make large barrels of cheese balls usually sold at Sam's Club's, Costco, or possibly Walmart (OR, MDMHVONPA can mail you some from Pennsyltucky where they are made!). I use a shaker to mix the powders in so they sprinkle over the mix evenly. ENJOY!


And, since some of you even requested samples of the pumpkin and banana bread I make, I give you THESE recipes also!


Banana Nut Bread


2 cups sifted flour

1 TSP soda

1/2 TSP salt

1/2 cup margarine (I use real butter)

1 cup sugar

2 eggs

1 TSP vanilla

3-4 bananas

1 cup chopped nuts


Measure and sift together flour, soda, and salt. Cream margarine(butter) and sugar together. Add eggs and vanilla and stir until thoroughly mixed. Stir in mashed bananas. Fold in dry ingredients. Place in well greased and floured loaf pans. Bake at 325-350 degrees for 55 to 60 minutes (or until a tooth pick stuck in the middle of the loaf comes out "clean").


Pumpkin Bread


1 2/3 cup flour

1/4 TSP baking powder

1/2 TSP cinnamon

1/4 TSP nutmeg

1/3 cup melted shortening (I use half real butter...there's a theme here!)

1 1/2 cup sugar

1 TSP soda

1/4 TSP cloves

1/4 TSP salt

1/3 cup water

2 eggs beaten

1/3 cup chopped nuts

2/3 cup raisins

1 cup cooked pumpkin (canned does just fine)


Combine dry ingredients and add remaining ingredients. Mix well together. Pour into well greased and floured loaf pan. Bake at 325 degrees for 1 hour.


And now you, too, my friends, can enjoy the same childhood kitchen treats I grew up with each holiday! Happy holidays...