tag:blogger.com,1999:blog-38895750.post7804657068514871251..comments2023-10-10T20:15:32.779-07:00Comments on BRAINCHEESE: Just What I Needed...BRAINCHEESEhttp://www.blogger.com/profile/04478852688645497036noreply@blogger.comBlogger13125tag:blogger.com,1999:blog-38895750.post-75334063352975910762008-05-16T12:07:00.000-07:002008-05-16T12:07:00.000-07:00Crud ... perhaps we can open a market for piece-me...Crud ... perhaps we can open a market for piece-meal blessings?mdmhvonpahttps://www.blogger.com/profile/05319386081400881905noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-85527986234367471332008-05-16T01:58:00.000-07:002008-05-16T01:58:00.000-07:00Linda will be thought to be mentally deranged if s...Linda will be thought to be mentally deranged if she gets an air-conditioner. (Though it is expected to be in upper 80s tomorrow...for an hour or so.)In Seattle they carry umbrellas in the snow and sit in front of dusty fans during brief heat waves. Houses and apt. bldgs often have no basements, nor screens in windows. Took this Midwest gal YEARS to get over all this. (And I DID buy a car with air-conditioning and had screens MADE for my windows...but even I wouldn't get an air-conditioner. A bald man buying a comb.Diane J Standifordhttps://www.blogger.com/profile/11862850657925658079noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-82645175120350028762008-05-15T22:13:00.000-07:002008-05-15T22:13:00.000-07:00How funny - my first thought when you wrote that y...How funny - my first thought when you wrote that your dr. was sending you for an MRI was, "what's that going to tell them? That she has a lesion on her spinal cord? We already KNOW that!" Glad you pointed that out to them... (Cuz, um, MRIing the spinal cord to check for PML? THAT makes a ton of sense... heh.)<BR/><BR/>What I'd like to see are MRI specials: get two spinal cord scans and we'll do your brain for free while you're in there! Here's some more valium; enjoy! :) More valium; maybe that would make paying the $200/pop fees less irksome.<BR/><BR/>(Oh, and you need to get yourself one o' them portable air conditioners: best $500 I've ever spent. Seriously.)LindseyOhttps://www.blogger.com/profile/01854324007177738140noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-61093576994079801872008-05-15T20:48:00.000-07:002008-05-15T20:48:00.000-07:00I like Diane's idea about getting frequent flier m...I like Diane's idea about getting frequent flier miles for all the MRI's. I'd sign up for that and then maybe I'd actually not mind too awful much going in that tube.Miss Chrishttps://www.blogger.com/profile/11731458343222525114noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-75818598222213837872008-05-15T12:58:00.000-07:002008-05-15T12:58:00.000-07:00What?!! Linda, you don't have air conditioning? ...What?!! Linda, you don't have air conditioning? You crazy gal. Talk about summer torture, even if you live up north.Lisa Emrichhttps://www.blogger.com/profile/10862232056342347990noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-46592844354046926242008-05-15T12:48:00.000-07:002008-05-15T12:48:00.000-07:00The people who send their kids to the Jesus Camp h...The people who send their kids to the Jesus Camp have you on their hit list! And Dr SWWWMBM--you think she is stubborn too? Then help us! We still have the annual debate of trying to persuade Linda to invest in an air-conditioning unit ahead of us! lolharkoohttps://www.blogger.com/profile/12055820464289576902noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-22639015564878608362008-05-15T08:54:00.000-07:002008-05-15T08:54:00.000-07:00Don't worry, I'll be with you in hell along with a...Don't worry, I'll be with you in hell along with all my friends. We are gonna have a blast with no one around to tell us how bad we are.Joanhttps://www.blogger.com/profile/01433899026248078576noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-60590023203515034632008-05-15T03:43:00.000-07:002008-05-15T03:43:00.000-07:00So is the moody, stubborn, uncooperative stuff an ...So is the moody, stubborn, uncooperative stuff an MS symptom? LOL Cause this is pretty much how something like this would go down with my husband (minus the part where he had any clue about the medical stuff). When he gets his tysabri the nurses leave the drip in his arm for the hour after because they are afraid he's going to just get up and leave cause he thinks it's ridiculous. And if they take a minute longer than an hour to remove it he will pull the IV out himself and once sprayed blood all over the table. Despite all this the nurses seem fond of him! LOL<BR/><BR/>Yep seems like maybe those are MS symptoms - I always though it was his Italian side that brought those things to the surface. :)<BR/><BR/>Glad you got the tysabri and hope that there is help for the mannequin hands.Triciahttps://www.blogger.com/profile/11399022634436650094noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-9712975120167558042008-05-15T03:20:00.000-07:002008-05-15T03:20:00.000-07:00huge drag. mind if i join you for a turd in hell?huge drag. mind if i join you for a turd in hell?Stephenhttps://www.blogger.com/profile/11815710739668433625noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-50576388250269706132008-05-15T02:45:00.000-07:002008-05-15T02:45:00.000-07:00Linda,to quote you:Well, holy shit marie...Somethi...Linda,<BR/>to quote you:<BR/>Well, holy shit marie...<BR/>Something else to add to the mix. I guess the creators were wondering about your juggling skills.<BR/>At least your sense of humour isn't degenerating.....<BR/>S.Anonymoushttps://www.blogger.com/profile/08793047835261862513noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-17220176843912803072008-05-15T00:06:00.000-07:002008-05-15T00:06:00.000-07:00Oh, Linda, so much I could say, but won't---just t...Oh, Linda, so much I could say, but won't---just this, the whole new disease/condition thing, yet ANOTHER MRI? Do you get frequent MRIer miles? YOU SHOULD! I...I...good thing you are not (add your agreement here) my sister/mother/lover/ because I would be...AAARRGGHHHDiane J Standifordhttps://www.blogger.com/profile/11862850657925658079noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-19578196860999521132008-05-14T22:52:00.000-07:002008-05-14T22:52:00.000-07:00Insensitive bloke! I like that, Lisa :)Glad to hea...Insensitive bloke! I like that, Lisa :)<BR/><BR/>Glad to hear that you got over your "stubborness" (LOL -- they've got the wrong girl there) and were able to get your infusion. I would have been right at the elevator with you. PO'd.<BR/><BR/>I had mannequin hands much of last summer. Bummer for drawing up meds from glass vials, I tell ya. And like you, my feet hopped me right back out of many baths run more than a little on the warm side. I got my hair cut *really short* at that point because I kept clipping my fingers into the back or getting them stuck in hair bands...<BR/><BR/>My neuro tried to tell me that it "could be carpal tunnel, or stress". <BR/><BR/>But hey -- at least as Mutants, we're NOT NORMAL!! :)<BR/>Shawna up NorthNervus Rexhttps://www.blogger.com/profile/06579761611141837016noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-88219280444750185942008-05-14T22:07:00.000-07:002008-05-14T22:07:00.000-07:00Oh dear. Arthritis has caused some 'screaming in ...Oh dear. Arthritis has caused some 'screaming in the middle of the night pain' but it hasn't altered the sensation of touch and temperature. But MS has. <BR/><BR/>During my recent relapse it was rather disappointing to retrieve a can of soda from the fridge and to truly believe that it wasn't cold enough. It didn't matter that the 12-pack has been in the fridge for days. I couldn't feel that the can was cold at all - and you know that that just messed with my mouth which was reluctant to believe that the soda was cool as a cucumber.<BR/><BR/>And then, most of the time, I have no real sensations in my finger tips. Very disappointing indeed. Don't get me started on the pinprick test. I can sit there and say, "I know you are poking me but it doesn't phase me one bit. Maybe next time you should sharpen your safety pin first." When the doc finally hin ts a feeling spot it's like, "yeow!!! that's sharp. What are ya tryin' t'do...draw blood?" <BR/><BR/>So far the docs and I are blaming the MS for my being so insensitive. Other than that, I've got no excuse for being a dull dope on occasion. I'll keep trying to do better and maybe someday I'll think of something to say which isn't based upon discussing my own faults and complaints. MS is turning me into an insensitive bloke (wink,wink).Lisa Emrichhttps://www.blogger.com/profile/10862232056342347990noreply@blogger.com