tag:blogger.com,1999:blog-38895750.post6097829236122453114..comments2023-10-10T20:15:32.779-07:00Comments on BRAINCHEESE: Wish I Had Something Earth-Shattering To Say...BRAINCHEESEhttp://www.blogger.com/profile/04478852688645497036noreply@blogger.comBlogger12125tag:blogger.com,1999:blog-38895750.post-73594750343452600222008-10-24T06:17:00.000-07:002008-10-24T06:17:00.000-07:00I promise to crawl in bed with you if you promise ...I promise to crawl in bed with you if you promise to crawl in bed with me. Deal?<BR/><BR/>You are...incredible. I hope I get the pleasure of meeting you one day.Have Myelin?https://www.blogger.com/profile/15180457748501693989noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-51815995136472350092008-10-23T05:59:00.000-07:002008-10-23T05:59:00.000-07:00"steroids . . . are/were the major catalyst behi..."steroids . . . are/were the major catalyst behind the tears that flowed from my eyes"<BR/><BR/>So then why are the rest of us crying????<BR/><BR/>Thanks, Ped-X Colleen, for reminding me of being carried half asleep from the car by my dad. <BR/><BR/>Remember the John Denver song, "Gramma's Feather Bed"? I'm thinkin that's how big your bed is going to need to be! <BR/><BR/>Hugs, PennyAnnWalk Starshttps://www.blogger.com/profile/10693731803279525864noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-49811583995458478582008-10-22T23:26:00.000-07:002008-10-22T23:26:00.000-07:00I'm sure your POD will crawl into bed with ya, but...I'm sure your POD will crawl into bed with ya, but I'm not sure how gentle she'll be. I think I'll just drop-kick ya and punt ya home -- happy to send ya to a place you'll be pain free, that is for sure! <BR/><BR/>I watched that oprah too. As someone who has gone through troubling cognitive problems I so identified with her talking about being in a zone...that a person had to truly try reaching her in order for her to WANT to try to communicate back. I'm a believer that when synapes are blocked by lesions the brain does work to find alternative pathways. Sounds like that worked for the doctor, too. I'd like to read her book.<BR/><BR/>Regarding MS fatigue. I've been able to "push" myself more for a time, but then I became incoherent and felt I couldn't move. Knew I had to stop what I was doing to crawl into bed. I then slept solid from 6 p.m. Tuesday Then I woke up feeling OK (for a spaz)but wasn't didn't do much. Now PAIN level is really high...guess I need more rest, YUK. This is so boring. <BR/>I am curious if you really needed the steroids, or if it was just a way you could justify bedrest. You KNOW your body was in extreme need of rest. Do YOU think if you'd just spent three or four days of solid bed-rest your body would have healed itself to the same point? I'm just rambling here because after ONE round of Soly, plus the tapering off, I vowed never to put that or Avonex in my body again. I felt DRIVEN to suicide day 1 of the tapering off. Same with Avonex.<BR/>Dr. She a smart woman since she doesn't do the tapering off anymore. I'll have to ask my own neuro about that. I DO know when I was infused with SOLY in Dec. of 04 was the only time I felt warm in the cold damp weather, and that was nice.<BR/>Whelp, off to try to medicate and placate my pain/spasticity enough to go nite, nite.Spaz Attackhttps://www.blogger.com/profile/16028118630456939910noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-91347741023133151952008-10-22T20:19:00.000-07:002008-10-22T20:19:00.000-07:00I know you already received the award from Lisa, o...I know you already received the award from Lisa, ou are one of my favorite sites. Therefore, you are going to have to live with being popular :)Blinders Offhttps://www.blogger.com/profile/03109286529955936165noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-88536871140757020562008-10-22T16:24:00.000-07:002008-10-22T16:24:00.000-07:00I have to say I agree with all the other commenter...I have to say I agree with all the other commenters. You certainly do have a way with words.Miss Chrishttps://www.blogger.com/profile/11731458343222525114noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-55747779820894997422008-10-22T13:30:00.000-07:002008-10-22T13:30:00.000-07:00I'll find you and crawl in with you...if it's not ...I'll find you and crawl in with you...if it's not already crowded with the Seattle crew...<BR/><BR/>S.Anonymoushttps://www.blogger.com/profile/08793047835261862513noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-14904708792716377652008-10-22T12:56:00.000-07:002008-10-22T12:56:00.000-07:00I had to look up eloquence, and after looking it u...I had to look up eloquence, and after looking it up. I agree.Anonymoushttps://www.blogger.com/profile/12636656959074070720noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-5980700105017899002008-10-22T10:04:00.000-07:002008-10-22T10:04:00.000-07:00Reading your account made me cry too. It's not ju...Reading your account made me cry too. It's not just steroids. That was beautiful and poignant. Thanks for sharing.Denver Refashionistahttps://www.blogger.com/profile/17681030016057155728noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-36952860135326235722008-10-22T07:30:00.000-07:002008-10-22T07:30:00.000-07:00I was going to say the same thing Jen said! You h...I was going to say the same thing Jen said! You have such eloquence. Which especially impresses me in your steroid stupor!<BR/><BR/>I, too, love that Dr.'s story. I've heard her on NPR too. I was impressed with her mother's intrinsic understanding that her daughter just needed to be held. Remember how good we all felt when our Dad would carry us, sleeping, out of the car?! Parental love at it's most basic.<BR/><BR/>I am so sorry you are dealing with your MS flare up and steroids. The one time I had the steroid shunt (and taper!) drove me crazy. I am probably one of the few people who actually loses weight while on steroids. I just could not eat anything! And I was not able to be productive (cleaning the baseboards with a toothbrush, indeed!). My analogy to being on steroids is I felt like I was vibrating on a different frequency than the rest of the universe. I couldn't be productive, but I also couldn't shut my mind off. CRAZY!<BR/><BR/>I am enjoying reading your blog and so glad to have found you. Take care!!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-38895750.post-34134910992907717242008-10-22T07:29:00.000-07:002008-10-22T07:29:00.000-07:00You made me cry....You definitely got a handle on ...You made me cry....<BR/>You definitely got a handle on those thoughts.Bubbiehttps://www.blogger.com/profile/00243081013090420013noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-53214874363324488722008-10-22T06:05:00.000-07:002008-10-22T06:05:00.000-07:00I have tears just reading your post. I can't imag...I have tears just reading your post. I can't imagine how I would be watching the show!! I'm going to look into more about her.~Erin~https://www.blogger.com/profile/16710412631383800874noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-29316553305525116742008-10-22T06:01:00.000-07:002008-10-22T06:01:00.000-07:00One word: eloquent.One word: eloquent.Jenhttps://www.blogger.com/profile/17421022098477662697noreply@blogger.com