tag:blogger.com,1999:blog-38895750.post4736120238401335163..comments2023-10-10T20:15:32.779-07:00Comments on BRAINCHEESE: I Ain't Dead...Yet...BRAINCHEESEhttp://www.blogger.com/profile/04478852688645497036noreply@blogger.comBlogger13125tag:blogger.com,1999:blog-38895750.post-45845867971023025172008-03-08T22:34:00.000-08:002008-03-08T22:34:00.000-08:00HAVE MYELIN:COME ON UP HERE!!! Oh, my Gawd we'd h...HAVE MYELIN:<BR/><BR/>COME ON UP HERE!!! Oh, my Gawd we'd have fun...me, totally only able to speak dirty words in ASL and you...well, being you! What a treat that would be...<BR/><BR/>LDBRAINCHEESEhttps://www.blogger.com/profile/04478852688645497036noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-52104944109258741622008-03-08T16:39:00.000-08:002008-03-08T16:39:00.000-08:00Wanna know about my world? Hubby finally rolled of...Wanna know about my world? Hubby finally rolled off his Seattle project (whee, I thought he's HOME now) but before his plane landed they started calling. Now Microsoft wants him for a project. Sigh. At least he gets to stay home a month. I should tag along and meet the new Luna! HA.Have Myelin?https://www.blogger.com/profile/15180457748501693989noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-91874754332600568082008-03-06T21:05:00.000-08:002008-03-06T21:05:00.000-08:00LISA E:Absolutely wonderful project you've done! ...LISA E:<BR/><BR/>Absolutely wonderful project you've done! And very detailed and informative. Thank you...<BR/><BR/>LDBRAINCHEESEhttps://www.blogger.com/profile/04478852688645497036noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-20777604527264572008-03-06T21:04:00.000-08:002008-03-06T21:04:00.000-08:00CALLIE:Yes, it's a hard call sometimes whether or ...CALLIE:<BR/><BR/>Yes, it's a hard call sometimes whether or not to take the roids or ride it out...often, I'm a "rider"...but this episode was stealing my joy, so I "roided"!<BR/><BR/>LDBRAINCHEESEhttps://www.blogger.com/profile/04478852688645497036noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-48563892718847742182008-03-06T21:03:00.000-08:002008-03-06T21:03:00.000-08:00ANNE:Thanks Anne...I think I'm mending rather than...ANNE:<BR/><BR/>Thanks Anne...I think I'm mending rather than amending at this point!<BR/><BR/><BR/>LDBRAINCHEESEhttps://www.blogger.com/profile/04478852688645497036noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-32817950224092466282008-03-06T16:26:00.000-08:002008-03-06T16:26:00.000-08:00Oh Linda,I'm so sorry for the steroid BS and every...Oh Linda,<BR/>I'm so sorry for the steroid BS and everything going on. Geezus, What a world! My Doc, attempted to mention steroids in the future if there were to be any more issues and I told him, Hell No!,I'm fat enough and I'll crawl first. Of course,I can say that now, but who bloody knows. Geezus, I hate to hear these things. Please take care and mend soon!Calliehttps://www.blogger.com/profile/05704537697611988375noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-57126529867232963672008-03-06T10:45:00.000-08:002008-03-06T10:45:00.000-08:00Hi Linda: Glad you are on the mend. Take care. A...Hi Linda: Glad you are on the mend. Take care. AnneAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-38895750.post-56910165711807471102008-03-06T08:28:00.000-08:002008-03-06T08:28:00.000-08:00SUE:OMG! Another nurse! LOL Thanks for sharing ...SUE:<BR/><BR/>OMG! Another nurse! LOL Thanks for sharing your cliffnote version of your MS story...sounds like you've been through the ringer with your MS?<BR/><BR/>If you ever feel so inclined, email me sometime and we can swap dirty nursing stories...what type of nursing did you do, BTW? Oh well, what type of nursing IS there really besides the crappy/crazy kind?!? LOL<BR/><BR/>LDBRAINCHEESEhttps://www.blogger.com/profile/04478852688645497036noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-52245547095797595142008-03-06T08:23:00.000-08:002008-03-06T08:23:00.000-08:00ADINA:Ah, what poses as "strength" here is really ...ADINA:<BR/><BR/>Ah, what poses as "strength" here is really pure fearful energy. So sorry to hear you are having such a fighting time of it...would love to continue email chats with you if you feel up to it? Purely for selfish reasons though...you brighten my day and make me smile!<BR/><BR/>LDBRAINCHEESEhttps://www.blogger.com/profile/04478852688645497036noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-38717947839631012692008-03-06T08:21:00.000-08:002008-03-06T08:21:00.000-08:00DIANE:OMG! I don't know if I should thank you for...DIANE:<BR/><BR/>OMG! I don't know if I should thank you for the entertainment or send 911 to your place!!! You sound as if you have a great working relationship with your Aides...that's so nice to read about because I KNOW it isn't always that way for people in finding a good fit.<BR/><BR/>Stay sober...LOL<BR/><BR/>LDBRAINCHEESEhttps://www.blogger.com/profile/04478852688645497036noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-56691216774555529982008-03-06T08:20:00.000-08:002008-03-06T08:20:00.000-08:00Good to hear you're seeing the light at the end of...Good to hear you're seeing the light at the end of the tunnel. How long has it been since your last Novantrone? At least 3 months before you give the Tysabri a go, yes? Happy you have your auto back, too...YAY! I've been off work for 7 months now due to increasing decreasing mobility courtesy of MS..I am a LVN (LPN in your neck of the woods!) I had applied for SSDI a few months into my time off because I felt so much better not working in terms of dealing with MS. Now, almost 6 months later, I received word that the SSDI was approved (it felt so weird about feeling good to be declared disabled)What a relief..I've worked for 35 years and was Dx with MS 20 years ago.So, thats my big news!<BR/>Sue in CaliforniaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-38895750.post-87222967754173932302008-03-06T03:41:00.000-08:002008-03-06T03:41:00.000-08:00it's wonderful that you crawled out of the relapse...it's wonderful that you crawled out of the relapse hole! I don't have relapses anymore and i'm not sure if that's better or worse ? Also, I don't think that you should go back to work so soon, but what do i know ??<BR/>I am getting ready to have my second , follow up, Rituxan infusion. I envy your strenght to fight ! I am ready most days to wave the white flag...<BR/>Stay strong Linda !<BR/>AdinaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-38895750.post-44548408889010413392008-03-06T00:44:00.000-08:002008-03-06T00:44:00.000-08:00For your entertainment: And OF COURSE it is all ab...For your entertainment: And OF COURSE it is all about you-DUH.<BR/>I lately have been tering out magazine ads showing a "new" product I want to try. I tear it out, leave it for my aide who stops at the grocery when she comes to babysit me. Well, I wanted this "Fusion," juice drink "100% daily serving of vegs and fruits in each 12oz bottle. After weeks my local store still did not stock it. So Tues., my aide found them for only 50 cents at an outlet store.(WAKE UP) She bought 6 for me and I took a sip...NIRVANA! Most delicious thing I ever drank! Better than sex! I chug a lugged while my partner telling me to "slow down, you're going to get sick." Then I was accused of being drunk. I did feel like I was guzzling Jack Daniels. 2hrs later---I feel like I'm dieing. get shakes, bad leg is quivering like a bowl of jelly. AND I HAD TO POST MY BLOG!! My left hand went spastic. Fell aslep around 1 and sleep all day, then felt great and craved another Fusion. Which I drank and forced my CNA to drink too and see of she died. We both lived, but a tiny can of V-8 has fewer calories and carbs and sugars.Diane J Standifordhttps://www.blogger.com/profile/11862850657925658079noreply@blogger.com