tag:blogger.com,1999:blog-38895750.post32277523340258411..comments2023-10-10T20:15:32.779-07:00Comments on BRAINCHEESE: Mystery Illness...BRAINCHEESEhttp://www.blogger.com/profile/04478852688645497036noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-38895750.post-87813308280388269762009-03-12T07:48:00.000-07:002009-03-12T07:48:00.000-07:00I've had something similar a couple of times. The ...I've had something similar a couple of times. The first time my dr sent me thru lots of tests to find a reason outside of MS to explain what was happening. I'm still confused over what she thought was the culprit, but I ended up taking balance PT which was no fun since I couldn't walk a straight line. And, like you, I was just too tired in addition to being dizzy all the time.<BR/>The second time came on very fast -- I felt a little off-balance and then just keeled over with no warning. That time I went on steroids but had such shaky legs in addition to dizziness that I ended up walking with a cane for a couple of months.<BR/>Good luck with your steroids. You must be done by now. Give yourself some time to heal.<BR/>BTW, I just love your blog. You make me laugh.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-38895750.post-86564820716938083002009-03-02T04:20:00.000-08:002009-03-02T04:20:00.000-08:00I had the same thing as Shauna. I didn't get diagn...I had the same thing as Shauna. I didn't get diagnosed quick enough to avoid a complete mental breakdown after a week of no sleep or food. Then they FINALLY gave me something to help me get back to life, even though I had called them several times during that week. This was about 5 years before finding out I had MS, so maybe it was the beginning of MS, who knows? I just know it SUCKED!Blindbeardhttps://www.blogger.com/profile/13653985941985467240noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-13937722918445444472009-03-01T16:55:00.000-08:002009-03-01T16:55:00.000-08:00Man o' man, Linda, when you get sick you know how ...Man o' man, Linda, when you get sick you know how to do it right. You sound completely miserable. I feel so bad for you.<BR/><BR/>In my 27 1/2 years with MS I've not experienced anything like this. The only time my head spun so bad that I threw up was when I gave myself food poisoning! So I have no suggestions for you. Sorry. Also, no experience with heart murmurs and thready pulses. Sorry.<BR/><BR/>Nagging thought: could the flu bug be this insidious? It is flu season, after all.Websterhttps://www.blogger.com/profile/13518858062969978457noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-59012147897154979432009-03-01T15:00:00.000-08:002009-03-01T15:00:00.000-08:00Just a thought: I had frequent vomiting for severa...Just a thought: I had frequent vomiting for several years and was on meclizine for dizzyness before I was dx with gastroparesis. The neurologist thought those symptoms were from the betaseron and dc'd that. We went round and round till my Internist suggested I go to a gastroenterologist. I guess gastroparesis happens with MS. Toss it around and think on it.harkoohttps://www.blogger.com/profile/12055820464289576902noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-22812822008892027012009-03-01T14:12:00.000-08:002009-03-01T14:12:00.000-08:00I actually expereince something similar a lot. Mi...I actually expereince something similar a lot. Mine is usually not as severe as your's sounds but I have been feeling nauseated fro about four days now and my head has also been aching a lot. I frequently get dizzy at the end of a long day. It seems my only cure is lots of sleep but when it is most severe I too cannot sleep. I can relate to the feeling of wanting to die after a few days of these symptoms. Mine illnesses often seem related to my period but not always. They are often tied to fatigue, especially to tired eyes.Denver Refashionistahttps://www.blogger.com/profile/17681030016057155728noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-37870064440779626802009-03-01T10:44:00.000-08:002009-03-01T10:44:00.000-08:00Oh Brain. So sorry you are ill. If it's not one ...Oh Brain. So sorry you are ill. If it's not one thing it's another--and ultimately Drs will conclude it has to do with MS. Ah, nice to have the default disease to make the default dx. I'm surprised they did manage to do all those tests instead of just writing it off.<BR/><BR/><BR/>Your symptoms sound like me on steroids. A personal hell I hope to avoid. <BR/><BR/>Hang in there. Looking forward to better days for you and better blogs for us!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-38895750.post-17878141252625478062009-03-01T06:45:00.000-08:002009-03-01T06:45:00.000-08:00I have never had this but I will hold your hand un...I have never had this but I will hold your hand until this passes.....will that help? :(<BR/><BR/>I am so sorry Linda D.<BR/><BR/>I don't know what to say.Have Myelin?https://www.blogger.com/profile/15180457748501693989noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-6843961321304540192009-03-01T04:57:00.000-08:002009-03-01T04:57:00.000-08:0016 years ago, I went through that exact same thing...16 years ago, I went through that exact same thing. One solid week of extreme dizziness and running to the bathroom thinking I was going to get rid of whatever was in my system, which after having not eaten for a couple of days, was absolutely nothing. And I didn't know what end to put over the toilet. No fever to indicate an infection, but everything was chalked up to a bad flu bug.<BR/><BR/>Was completely debilitated. And no one could figure out what was going on. Within a couple of months the anxiety level rose high enough for my doc to give me ativan. And I asked to see a psyche professional.<BR/><BR/>I was having panic attacks, not eating properly of course, simply afraid I was going to disperse anything I took in. I spent my non-dizzy time sleeping.<BR/><BR/>Long story short, I got myself over the panic attacks and diagnosed myself with depression. My doc agreed, got me on appropriate meds, and I've been good ever since.<BR/><BR/>But at the time, I wanted to die. From the time of onset to recovery (at least enough to return to work) was about 6 months. I was off work for 3 months total.<BR/><BR/>This all occurred 5 years before MS, though I truly believe it was the onset of my MS. There have been studies linking depression up to 3 years before onset of "physical" symptoms of MS, but I am convinced that was the beginning of my brain chemistry changing because of MS.<BR/><BR/>We all know by now that physical symptoms aren't the only result of MS. Anxiety, depression, and other mood changes are also connected to MS. And the mood changes can result in physical changes and symptoms.<BR/><BR/>So you're not the only one. Been there, done that, threw up on the t-shirt. With any luck, it is transitory and just another one of those annoying things we MSers suffer through.<BR/><BR/>Sending good thoughts your way. you have to get better. If only to amuse your minions.<BR/><BR/>S.Anonymoushttps://www.blogger.com/profile/08793047835261862513noreply@blogger.com