tag:blogger.com,1999:blog-38895750.post2950814183439255761..comments2023-10-10T20:15:32.779-07:00Comments on BRAINCHEESE: Shots Have Been Fired...BRAINCHEESEhttp://www.blogger.com/profile/04478852688645497036noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-38895750.post-19391832275861234652008-12-14T05:29:00.000-08:002008-12-14T05:29:00.000-08:00Give 'em hell! I don't mind conflict when I know I...Give 'em hell! I don't mind conflict when I know I'm in the right. Growing up in a family of conflict, it just comes naturally to us. It really pisses me off when I think about others profitting from our (or any) disease. It just ain't right, pardner.Blindbeardhttps://www.blogger.com/profile/13653985941985467240noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-81385073164628897832008-12-04T12:52:00.000-08:002008-12-04T12:52:00.000-08:00Good for you, continuing to fight. Anymore it see...Good for you, continuing to fight. Anymore it seems like I can hardly handle the day-to-day. Stay tough.Denver Refashionistahttps://www.blogger.com/profile/17681030016057155728noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-81664255610315479322008-12-03T20:19:00.000-08:002008-12-03T20:19:00.000-08:00Call John Stossel! He's easy on the eyes and good ...Call John Stossel! He's easy on the eyes and good with undercover cameras. Tehehehe.....Have Myelin?https://www.blogger.com/profile/15180457748501693989noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-8942213898299368222008-12-03T17:35:00.000-08:002008-12-03T17:35:00.000-08:00Oh, yeah, you go girl......I am so delighted to kn...Oh, yeah, you go girl......<BR/>I am so delighted to know you over this here interweeb and glad you are a friend. I'd not want to be a foe.<BR/><BR/>By the way, I also HATE conflict and avoid it when possible. One of our few flaws methinks, but when our back is up, and justifiably so, lookout world. You also have a unique perspective, being a member of the medical world.<BR/><BR/>S.Anonymoushttps://www.blogger.com/profile/08793047835261862513noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-63362762882702434092008-12-03T16:48:00.000-08:002008-12-03T16:48:00.000-08:00Hey ya BraingnificentThanks for informing me about...Hey ya Braingnificent<BR/><BR/>Thanks for informing me about the multi Invester -- they sure are interested in what you have to say. So to put my two cents in Tysabri costs too much and has too many hoops to jump threw, so until that changes I'm done considering Tysabri.<BR/>As for you, Missy Cheese, you speak because of a powerful, innate desire within you to speak up when there's "sumthing rotten in Denmark." None like conflict, but I as a person with MS I'm so appreciative of your powerful voice and that you're not an ostrich who tries to stick her head in the sand -- pretending not to notice.<BR/><BR/>So, keep it up BABE, however, if you're brain is hurting, stop, rest, and take up the fight another time. You gots enough adrenaline rushes going on in your life.<BR/>I'd advise you to be balanced, but you know by now I don't practice what I preach -- which is why I have DAYS I'm dazed, fatigued and can't get out of bed.<BR/>After spending 4 dazed days I'm back to building.........rest assured I gots your back Chick, so if ya want anything just hollar (LOL)Spaz Attackhttps://www.blogger.com/profile/16028118630456939910noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-61339350581420026102008-12-03T11:49:00.000-08:002008-12-03T11:49:00.000-08:00DEAR ANONYMOUS LIVING IN SEATTLE:I feel I must ans...DEAR ANONYMOUS LIVING IN SEATTLE:<BR/><BR/>I feel I must answer your comment here by telling you, the CARE I receive at Club Med is excellent, both by my neurologist AND the infusion nurses where I receive my Tysabri. This should not be confused with the BUSINESS PRACTICE of Club Med. I stand by my claim that I see one of THE leading MS Specialists in the nation...who happens to work at Club Med.<BR/><BR/>I have also received MS care at another "leading" hospital facility in Seattle, who frequently makes the TOP TEN list of Hospitals of Excellence...I switched from this facility because the neurologist I saw there (who, BTW, was ALSO an excellent physician) worked within a completely disorganized clinical branch of this facility. I could no longer tolerate the incompetence of the CLINIC staff there, so I switched facilities/neurologists to escape that system. I am VERY happy with the care I receive via the CLINIC at Club Med and feel I am in excellent hands. My "issues" are with the billing practices of the HOSPITAL SYSTEM, which you WILL find exist throughout the ENTIRE hospital networks in the region...they have found a way to capitalize on a marketing niche and, IMHO, are exploiting it, much like what occurred with HIV/AIDS patients when their expensive medications and treatments first came about. It is an unfair and greedy capitalistic practice that drives the cost of health care up for EVERYONE in the system, not just MS patients.<BR/><BR/>Nuff said?<BR/><BR/>BRAINCHEESEBRAINCHEESEhttps://www.blogger.com/profile/04478852688645497036noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-26444808568820024222008-12-03T11:37:00.000-08:002008-12-03T11:37:00.000-08:00I think these ideas are great. I live Seattle wit...I think these ideas are great. I live Seattle with "possible" MS, and I keep looking for clues in your Tsybari posts trying to identify "Club Med" and avoid them if possible.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-38895750.post-30349564391212346792008-12-03T11:20:00.000-08:002008-12-03T11:20:00.000-08:00I do like Anne's idea of a video record of your up...I do like Anne's idea of a video record of your upcoming infusion. What a perfect opportunity to get this story started in the media.<BR/><BR/>Although one commenter on your previous post mentioned switching to a non-profit facility, I believe that would NOT make a difference. Nowadays for-profit and non-profit really seem to make little difference.<BR/><BR/>As you could tell from response (last month?) from one of my insurance blogger buddies, the excess spent in the overall healthcare system for health care delivery is too often unrecognized.<BR/><BR/>This has potential to be a REALLY BIG story which just might make a difference. I'll be thinking of ways to help you get that story out. The cogs are rolling....Lisa Emrichhttps://www.blogger.com/profile/10862232056342347990noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-90518433218684326942008-12-03T07:39:00.000-08:002008-12-03T07:39:00.000-08:00While you are sitting getting your 8th Tysabri inf...While you are sitting getting your 8th Tysabri infusion, consider which one of the TV media special investigations reporter in YOUR own hometown would most likely jump at this story.<BR/><BR/>Then call 'em.<BR/><BR/>Even if Club Med resolves, it is still not ok. This has been going on for months and they have proven they are not user friendly. <BR/><BR/>The media loves to hear stories that can be proven with your wealth of paperwork regarding price gouging for drugs - especially big places like Club Med and for drugs like Tysabri.<BR/><BR/>I am sure Biogen has some idea of what is going on. I can't believe they are in the dark about how their drug is being administered and what the costs are. They have a marketing plan which goes to the smallest detail and that includes how facilities administer their drug and what costs are involved.<BR/><BR/>You have just scraped the tip of the iceberg. Go Girl!!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-38895750.post-6352230861487475732008-12-03T06:44:00.000-08:002008-12-03T06:44:00.000-08:00Is it wrong to feel a little bit sorry for Goliath...Is it wrong to feel a little bit sorry for Goliath (Club Med) because we can see his defeat coming and he is so clueless?Walk Starshttps://www.blogger.com/profile/10693731803279525864noreply@blogger.com