tag:blogger.com,1999:blog-38895750.post1909431816131650452..comments2023-10-10T20:15:32.779-07:00Comments on BRAINCHEESE: Has Anyone Else Been Following This?..(Time For An MS Update)BRAINCHEESEhttp://www.blogger.com/profile/04478852688645497036noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-38895750.post-61612258371804148422007-06-03T23:01:00.000-07:002007-06-03T23:01:00.000-07:00PEEJ:So glad to hear you are somewhat improved! A...PEEJ:<BR/><BR/>So glad to hear you are somewhat improved! Although missing Mel makes me question whether or not the MS has finally eaten your brain! LOL<BR/><BR/>Yeah, I agree...there's a hellofalot "they" don't know about MS...maybe this recent discovery will bring us some answers?<BR/><BR/>LDBRAINCHEESEhttps://www.blogger.com/profile/04478852688645497036noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-86085454900467274372007-06-03T22:40:00.000-07:002007-06-03T22:40:00.000-07:00You're right, and we may never know everything abo...You're right, and we may never know everything about this disease. <BR/><BR/>This article however may have just explained why I've developed all the symptoms I have even though the dr says I shouldn't have them based on the few lesions (3) we can find on the MRIs and their general locations. It's been a complete mystery up to now.<BR/><BR/>Believe me, it was lonely being out of touch too. I miss all of you (even Mel) when I don't get online... Hmmm....maybe I need one of your co-workers (Massachusetts version, of course) to do an eval on ME! LOL!<BR/><BR/>I'm better thanks. Hands aren't spasming up as much lately (knocking wood it'll stay that way) though my feet/calves aren't giving up quite as easily. The hands are new though I've been dealing with the feet for years... Anyway, I just haven't been a lot of laughs lately, y'know? I try to stay out of normal (ha!) society when I'm sleep deprived and bitchy. :)<BR/><BR/>Hope to see you online soon. I've missed our chats. :)Peejhttps://www.blogger.com/profile/06347463380333030626noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-73420194075493047482007-06-02T23:51:00.000-07:002007-06-02T23:51:00.000-07:00PEEJ:And welcome back to YOU, too! How are you re...PEEJ:<BR/><BR/>And welcome back to YOU, too! How are you recovering these days? It's been a bit "lonely" with your relapse going on...I'm hoping the typing fingers are improving everyday.<BR/><BR/>Yep, I think there's a hella lot NO ONE knows about MS...this article sounds excitingly encouraging...<BR/><BR/>LDBRAINCHEESEhttps://www.blogger.com/profile/04478852688645497036noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-4639117746298470582007-06-02T23:35:00.000-07:002007-06-02T23:35:00.000-07:00I get the magazine as well though I hadn't read th...I get the magazine as well though I hadn't read this one yet. The article you quoted sounded so reasonable to me that I had to go and read it for myself. At the end of it I experienced a "DUH!" moment... a "well dayum! That makes perfect sense" kind of thing. <BR/><BR/>Think about it... why do the majority of us go from RR to SP like clockwork? They say it averages out to be about 10 years. Can it be that SP is what is left after all those stealth lesions are done with us? Sounds about right to me....<BR/><BR/>And Primary Progressive MS... Why does it look and act so different from "normal" MS? Could it be that the bulk of the lesions are in the gray matter rather than the white (or whatever is opposite most RR/SP MS club members)? I'd love to hear more about this new development. It really has me curious. :)<BR/><BR/>Welcome back from vacation! Sounds like you had a great time. <BR/><BR/>Hugs!<BR/>PeejPeejhttps://www.blogger.com/profile/06347463380333030626noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-27048913347275445802007-06-02T21:56:00.000-07:002007-06-02T21:56:00.000-07:00HARKOO/JOYCE:Yes, I agree...there is probably no b...HARKOO/JOYCE:<BR/><BR/>Yes, I agree...there is probably no better time to have a diagnosis of MS than now...at least for the newly diagnosed.<BR/><BR/>What do you think of the questions on the NARCOMS surveys? Sometimes on a few of them, I think they miss the boat...but over all, I am pleased with their efforts.<BR/><BR/>LDBRAINCHEESEhttps://www.blogger.com/profile/04478852688645497036noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-75197118607963791252007-06-02T09:03:00.000-07:002007-06-02T09:03:00.000-07:00I have had MS for 20 years--was given betaseron 8 ...I have had MS for 20 years--was given betaseron 8 years ago-before that just prednisone for attacks. I have enrolled in the Narcoms Study also and read the same newsletter Linda refers to. It is no surprise to me that after a very light case of MS for years, it took just several stressful events to put me into a w/c. And why my mind feels like cotton candy at times. You are all lucky you at least have the chance to start out taking the new drug regimes from the outset of your diagnosis.harkoohttps://www.blogger.com/profile/12055820464289576902noreply@blogger.com