tag:blogger.com,1999:blog-38895750.post1632443825493984742..comments2023-10-10T20:15:32.779-07:00Comments on BRAINCHEESE: Have I Become TOO Accepting Of Multiple Sclerosis?...BRAINCHEESEhttp://www.blogger.com/profile/04478852688645497036noreply@blogger.comBlogger22125tag:blogger.com,1999:blog-38895750.post-20385473033650503612007-07-18T17:19:00.000-07:002007-07-18T17:19:00.000-07:00Nice to meet you :) The name "Tidesong" was somet...Nice to meet you :) The name "Tidesong" was something I made up about 10 years ago. It's interesting to find others using it now, too. NO, MINE! *giggle* My LiveJournal will seem incredibly boring, unless you're a member of LJ on my friendslist...most of my entries with any content are locked. But if you have an account, or end up making one, let me know who you are, and I can add you if you'd like. :)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-38895750.post-48509980982972465562007-07-04T18:49:00.000-07:002007-07-04T18:49:00.000-07:00Read "The Secret" - it really does work!Read "The Secret" - it really does work!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-38895750.post-17225498440579203452007-07-02T21:47:00.000-07:002007-07-02T21:47:00.000-07:00MISS CHRIS:I, on the other hand, went kicking and ...MISS CHRIS:<BR/><BR/>I, on the other hand, went kicking and screaming down the path of "acceptance"...and my friends thought I was wrong, too. LOL<BR/><BR/>LDBRAINCHEESEhttps://www.blogger.com/profile/04478852688645497036noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-23867452215930738132007-07-02T15:21:00.000-07:002007-07-02T15:21:00.000-07:00I accepted my MS right away and my family and frie...I accepted my MS right away and my family and friends thought I was in denial. They soon realized they were wrong.Miss Chrishttps://www.blogger.com/profile/11731458343222525114noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-12553909529989316292007-07-01T22:58:00.000-07:002007-07-01T22:58:00.000-07:00STEVE:Briefly...ever so briefly...I thought you we...STEVE:<BR/><BR/>Briefly...ever so briefly...I thought you were referencing BOB DYLAN! That happens to those of us with MS...we read what we want to see...LOL<BR/><BR/>And thank you so much for the email and checking in...that was a very sweet thing to do and I really appreciate it. For the record: I'm OK...tired, in a bit more pain than a month ago, but STILL my snarky self!<BR/><BR/>LDBRAINCHEESEhttps://www.blogger.com/profile/04478852688645497036noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-15860430246351394822007-07-01T22:56:00.000-07:002007-07-01T22:56:00.000-07:00JOAN:Hi there...read your story on your blog yeste...JOAN:<BR/><BR/>Hi there...read your story on your blog yesterday (I think?!?). I really enjoy your writing style as you have a great way of making your thoughts/feelings clear and direct. Eventually I will get caught up and slow down in my life and be able to add your blog (along with others) to my daily read list as I would like to know how you are doing.<BR/><BR/>LDBRAINCHEESEhttps://www.blogger.com/profile/04478852688645497036noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-47856031247904720832007-07-01T22:53:00.000-07:002007-07-01T22:53:00.000-07:00PB:Thanks...will do! And it's nice to see you her...PB:<BR/><BR/>Thanks...will do! And it's nice to see you here again...my blog reading has fallen a bit "short" lately, so I can now link to your blog from your comment...thanks!<BR/><BR/>LDBRAINCHEESEhttps://www.blogger.com/profile/04478852688645497036noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-41035253161871104792007-07-01T22:52:00.000-07:002007-07-01T22:52:00.000-07:00FUNKY MANGO:AAAAAmen, sister! I doubt I'll ever g...FUNKY MANGO:<BR/><BR/>AAAAAmen, sister! I doubt I'll ever give up a good fight...as long as there is something worthy to BITCH about...LOL<BR/><BR/>LDBRAINCHEESEhttps://www.blogger.com/profile/04478852688645497036noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-69878692404073581562007-07-01T22:50:00.000-07:002007-07-01T22:50:00.000-07:00ZEE:As always, your comment is filled with wisdom!...ZEE:<BR/><BR/>As always, your comment is filled with wisdom! I used to say at work that I could do ANYTHING for 8 hours a day and, for the most part, I can...but 8 hours sure does DRAG on and on sometimes! LOL<BR/><BR/>How are YOU doing? Have you made a decision about your next treatment approach yet? I suppose I should check your blog to find out...<BR/><BR/>LDBRAINCHEESEhttps://www.blogger.com/profile/04478852688645497036noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-78508224583969990732007-07-01T22:48:00.000-07:002007-07-01T22:48:00.000-07:00TIDESONG:Hello and welcome to the HOUSE OF CHEESE....TIDESONG:<BR/><BR/>Hello and welcome to the HOUSE OF CHEESE. LOL It's very nice to meet you!<BR/><BR/>Sorry to hear you are yet ANOTHER club member of MS...I'll check out your website as the screen name "tidesong" intrigues me like a cat with a mouse...<BR/><BR/>LSBRAINCHEESEhttps://www.blogger.com/profile/04478852688645497036noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-21923284249613847462007-07-01T21:38:00.000-07:002007-07-01T21:38:00.000-07:00While I don't know what it's like to live with MS,...While I don't know what it's like to live with MS, this hit a little close to home. As I've mentioned before, my wife's parents both have/had MS. I can't know what actually happened with my MIL, but the story I'm inclined to believe is that she was basically told upon diagnosis in the early 80's to quit her job, give up on driving, apply for disability and resign herself to a sedentary life of TV and books. I'm inclined to believe it because she's brutally honest, and has also done exactly this (in contrast to my wife who could be president if she wanted to be).<BR/><BR/>I guess what I'm saying is, we can't live each day for fear of what may happen tomorrow. It's a great tragedy when people live down to expectations, rather than up to potential.<BR/><BR/>Dylan Thomas wrote: <BR/>"Do not go gentle into that good night,<BR/>Old age should burn and rave at close of day;<BR/>Rage, rage against the dying of the light."<BR/><BR/>I'm a sucker for poetry, but this poem is famous for a reason.<BR/><BR/>And for the record, I'm not saying that you're old. :)Unknownhttps://www.blogger.com/profile/12483463638862958254noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-61881039581477033992007-06-30T14:15:00.000-07:002007-06-30T14:15:00.000-07:00I completely understand your musings in this posti...I completely understand your musings in this posting. I am a long-time MS'er who struggles with this same topic on a daily basis. I continue to wonder "am I just giving up or am I simply accepting?" I recently (finally) agreed to get an ankle foot orthosis (AFO), a brace to keep my right foot from dragging. Should I have exercised more instead? I also caved in and got a handicapped placard for my car. Now I'm just being lazy. Yet on days when I refuse to wear my brace, I feel like I'm dragging a concrete block. When I don't park close to the building, I'm exhausted when I get to my desk and can't work well. Am I being lazy, have I given up or given in? Dunno... <BR/><BR/>I invite you to read my story at www.shortinthecord.blogspot.com. <BR/><BR/>Thank you for setting up such a interesting blog! I will bookmark this one!<BR/><BR/>48/female/Aries<BR/>DX didn't come until 1999Joanhttps://www.blogger.com/profile/01433899026248078576noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-71577208366282493112007-06-30T08:17:00.000-07:002007-06-30T08:17:00.000-07:00Never accept! Never, never, never. The accepted ...Never accept! Never, never, never. The accepted "wisdom" was that I would wind up in a wheelchair.<BR/><BR/>Maybe so, but today is not that day.<BR/><BR/>If I have any say at all in it, neither will tomorrow.<BR/><BR/>Keep on keeping on, Kid.pbhttps://www.blogger.com/profile/11568681879593734160noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-27066303767033794072007-06-30T02:53:00.000-07:002007-06-30T02:53:00.000-07:00I accept that I have MS. I accept that it restrict...I accept that I have MS. I accept that it restricts what I can do physically (I can't walk far, I'm permanently fatigued etc). What I DON'T accept is that it restricts "what <B><I>I</I></B> can do". I'm going to go on living as full and as happy a life as I can, for as long as I can.<BR/><BR/>There's the physical you and the <B>you</B> you. From reading your blog I know you're one of the people who're always going to keep on fighting to be yourself - you go girl!Funky Mangohttps://www.blogger.com/profile/12169019858118418939noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-28552133325392698182007-06-29T22:43:00.000-07:002007-06-29T22:43:00.000-07:00As others have said, Linda - excellent post. I'm r...As others have said, Linda - excellent post. <BR/><BR/>I'm reminded of something I hear frequently in AA meetings: that surrendering and giving up (to a higher power, generally) gives you the freedom to live your life fully. Similarly, I think having a diagnosis means that you know what you're dealing with (as much as anyone can know what MS is planning to throw our way!) and you have a variety of ways to attack it. Knowing your "enemy" is half the battle - and accepting it makes it easier for you to determine your next steps. <BR/><BR/>And, also - another "AA-ism" is that you can accept something in your life - particularly those things you can't change - but you don't have to like it. I don't particularly <I>enjoy</I> or <I>like</I> having MS, but I have accepted that I have it and that my life is on a different road than it was a year ago.<BR/><BR/>I do tire of a lot of the people who plaster "I have MS but MS doesn't have me!" bumper stickers on their car or wear those rah rah rah t-shirts. MS sucks. There are no two ways about it. If it were a good thing, they wouldn't call it a "disease." :) <BR/><BR/>Seems to me, doing what we with MS have the energy and emotional strength to do, each day, is the most sane way to approach things: sometimes you just don't want to get out of bed. Sometimes you can't walk right and going for a walk is MORE trouble than it's worth. That's life and no accepting it is to live in denial... <BR/><BR/>Anyway, I'm blathering now, so I hope you can find a point somewhere in all that. :)LindseyOhttps://www.blogger.com/profile/01854324007177738140noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-81914147558113588202007-06-29T21:10:00.000-07:002007-06-29T21:10:00.000-07:00Hi. I just wanted to let you know how good it was...Hi. I just wanted to let you know how good it was for me to read a post like this. I found it through a search for "MS" I have on news feeds, and I'm glad I clicked on it.<BR/><BR/>I was diagnosed in January after a major attack started in October. Diagnosis was confirmed in March by an in-house second opinion. I still didn't believe it. I had an out-of-network second opinion visit up at the Mayo Clinic this week, and I'm *still* having a hard time coming to terms with this. It really helps to know someone else struggles with it. In fact, another dear friend of mine is struggling with a diagnosis of her own, of another life-altering kind of health issue, and I pointed her in this direction. I hope she reads it, too.<BR/><BR/>But thank you again for posting this. I'll be back from time to time; your posts seem like they're good for my spotted brain to read.... *HUGS*<BR/><BR/>TidesongAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-38895750.post-75721766966823084232007-06-29T18:33:00.000-07:002007-06-29T18:33:00.000-07:00JOYCE/HARKOO:I am simply left speechless by your c...JOYCE/HARKOO:<BR/><BR/>I am simply left speechless by your comment...and nearly moved to tears. Thank you...<BR/><BR/>(And I'm also glad to see you back...has the weather relented yet there?)<BR/><BR/>LDBRAINCHEESEhttps://www.blogger.com/profile/04478852688645497036noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-50724858405934984662007-06-29T18:31:00.000-07:002007-06-29T18:31:00.000-07:00PEEJ:Your "two cents worth" is ALWAYS valued beyon...PEEJ:<BR/><BR/>Your "two cents worth" is ALWAYS valued beyond currency! And I agree with the not banging your head against a wall comment...damn near gave myself a lasting concussion early on in this disease! LOL<BR/><BR/>LDBRAINCHEESEhttps://www.blogger.com/profile/04478852688645497036noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-33282313340873897242007-06-29T18:30:00.000-07:002007-06-29T18:30:00.000-07:00SARA:And I, too, hope you have a cloudless weekend...SARA:<BR/><BR/>And I, too, hope you have a cloudless weekend! Thanks for always sharing your thoughts here in the comments of this blog...I ALWAYS enjoy hearing from you and anyone else WITHOUT MS. I think sometimes having a "fresh set of eyes" (or eyes without optic neuritis!) peering into the world of MS is very refreshing! And, we all DO share the same path in so many ways...troubles and triumphs just take on varying forms is the only difference.<BR/><BR/>Thanks again for your insights...<BR/><BR/>LDBRAINCHEESEhttps://www.blogger.com/profile/04478852688645497036noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-21291454353856274712007-06-29T18:24:00.000-07:002007-06-29T18:24:00.000-07:00I worked with alcoholic women when I was a nurse a...I worked with alcoholic women when I was a nurse and I always have thought their prayer of "helping to change the things you can and accept the things you can't and be granted the wisdom to know the difference" were the wisest words i have ever heard and i try to live by them to this day. No big deal about accepting you have MS-you would be crazy to deny it at this point, but you still chose to fight it in many ways without giving up. And your blog helps people. In fact, i have never seen such a fight! But forgive yourself if you want to stay in bed somedays and say screw it! That is the weirdness of MS--it is always fluid and unpredictable. I am more spiritual than putting my faith in a "God" figure and you won't catch me in a church as i have never seen such evil perpetrated by some of those people who say they are regular church goers. The bejeweled ladies who tithe wouldn't be caught dead talking to a homeless woman who is intoxicated. YOu can all hate me now! That being said, It has been my observation that the God force seems to pick out her more interesting creations and shake things up for them to see what they are truly made of-to see how high the human spirit can go. Again, it has been my observation that the people in life who have everything go well with no glitches don't matter a hoot in the end--it is the people who have had difficulties, who have been brought to their knees who shake things up, make things happen in the world , truly know sensitivity toward their fellow man, and who appreciate the simple things that make life worth living. I think she is very proud of Linda. I am.harkoohttps://www.blogger.com/profile/12055820464289576902noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-73456659879296896402007-06-29T14:26:00.000-07:002007-06-29T14:26:00.000-07:00I've often heard people say "acceptance is defeat"...I've often heard people say "acceptance is defeat" and this, at least with MS, makes no sense to me. Yes, you need to do your research and see what new treatments are available BUT while you're waiting for "the cure" you also need to achieve peace of mind. How can you do this without some level of acceptance?<BR/><BR/>I've accepted that MS is, and most likely always will be, a part of my life. This doesn't mean I've given up on feeling good or living each day to the fullest. It simply means I'm not going to slam my head against a brick wall trying to change the unchangable...<BR/><BR/>That prayer which goes something like this... "help me to change the things I can and accept the things I can't -- and grant me the wisdom to know the difference." says it all.<BR/><BR/>Just my .02 for what it's worth. :)Peejhttps://www.blogger.com/profile/06347463380333030626noreply@blogger.comtag:blogger.com,1999:blog-38895750.post-27937426428544894112007-06-29T13:44:00.000-07:002007-06-29T13:44:00.000-07:00Really good post, even for us non-MSers! I hope t...Really good post, even for us non-MSers! I hope that by getting out of bed, exercising & eating well you felt a tiny bit better today, even if just by knowing that the MS didn't "get you down" today. <BR/><BR/>I believe (and of course this is only my opinion) you have to accept the disease, but that doesn't mean you can't fight to live your life. <BR/><BR/>I grew up with a recovering alcoholic mother, so I've heard "let go and let God" many times, but I think sometimes after you've let go & your higher power has given you something then you have the right to take what is given & do something with it - but then agian that's just my 2 cents - what the heck do I know?!?!?!?<BR/><BR/>Hope you have a fantastic weekend - I'm just hoping for an hour of sun this weekend (been raining for over a week straight now - ugh!!!)Sarahttps://www.blogger.com/profile/03375512448024903580noreply@blogger.com